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About Me
SandraEJonas
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About Me
Mother of 4, I was diagnosed with Myasthenia Gravis while I was expecting our fourth child.I decided not to take any medication during the pregnancy because of the unknown. I have gone from very active to limiting my daily activites to what I am able. I went to have Robotic surgery in Houston, Texas for a Thymectomy on October 13th I can't tell you how much better I feel.
Mother of 4, I was diagnosed with Myasthenia Gravis while I was expecting our fourth child.I decided not to take any medication during the pregnancy because of the unknown. I have gone from very active to limiting my daily activites to what I am able. I went to have Robotic surgery in Houston, Texas for a Thymectomy on October 13th I can't tell you how much better I feel.
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Interests
I am an Interior Designer and love to spend time designing and creating almost anything.Gardening, traveling, skiing?, cooking. Well I do have to admit spending time with the best supporter in the world my husband:)
I am an Interior Designer and love to spend time designing and creating almost anything.Gardening, traveling,
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Recent Activity
November 16
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SandraEJonas updated their status 9:15am
Have patience with all things, but chiefly have patience with yourself. Do...…
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Hope all is well, it's got to hard with a young family, when I watch my grandchildren I'm so tired when they leave. I stay over some and the motivated near, because very rarely do I stay out past 9:00. Take rests when ever possible and don't forget to take your drugs what are you on? L
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how are you today..................
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Thanks for the info!
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Sending love & light your way...
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Close Myasthenia Gravis
I have Myasthenia Gravis. I am a mother of three boys and one girl. I am 43 years old. I was diagnosed during my fouth pregnancy. It started with my eyes and then throughout my body by March of 2008. My daughter did get Neo Natal Myasthenia Gravis and was in the hosptial for seven weeks. The chances of a mother passing it to a child is less than 100 births a year in the United States. My condition became very severe.
Treatments
- Cellcept Not Working
- 2000mg daily didnt make any difference I was on it for one year
- IVIG Somewhat Helpful
- I get this treatment every 30 days 135 mg
- Mestinon Working / Worked
- 1 pill three to four times daily non generic
- Methotrexate Too Soon to Tell
- 2.5mg starting with then increasing to 10mg over a period of 3 weeks this is also used for Rheumatoid Arthritis
- Prednisone Working / Worked
- I have been on it for 1 1/2 years 60/40mg has not made me gain weight at all..
- Thymectomy Somewhat Helpful
- Went for surgery one year ago had it done by roboticshttp://www.houstoncardiacsurgery.com/Myasthenia_Gravis.html check ou the video that is me!!
