Tomorrow I am having an eye exam
March 21, 2009 1:32am
I had an MRI on 3/4/2009- my pituitary tumor is back-but this time I have two instead of one. I have an eye exam tomorrow so I am really nervous …
analilia 
4:26pm, October 11, 2008
-
About Me
analilia
-
About Me
Hello, my name is Ana Melendez and have 2 kids that I am truly blessed with they are the reason I look forward to tomorrow. I am a short sale specialist/customer service rep. I am so happy I found this website. I was always depressed because I didn't know anyone who understood what I have been going through.I was diagnosed with a Pituitary tumor on October 2004. Started taking cabergoline and had hemmoraghia due to this medication. I was prescribed to take birth control pills the last week of March 2006 to stop the heavy bleeding. I was only on birth control pills for less than 2 weeks when the unexpected happened. On April 15, 2008 I had sharp pains on my lower back and pain when I would walk on my leg, but I didn't think anything was wrong I just figured the pain would go away. I woke up Easter morning April 16, 2006 limping on my leg, I sat down for awhile, I noticed my ankle keep getting swollen by the minute, that's when I realized something was terribly wrong. I went to the ER and had an ultrasound done. I was waiting out on the hallway thinking maybe I had sprained my ankle. But, when I saw the look on my doctor's face I knew this was serious, he replied telling me you have a DVT, and said "sometimes bad things happen to good people."I never knew what a DVT was so I figured when they discharged me, it was something that would get better over time. I was discharged with lovenox injections-that was so awful. On April 19, 2006 I woke up went to the restroom and when I layed down I had a bad chest pain, my twin, my boyfriend's sister, and her puppy were there. The puppy-Isabel keep crying and wanted to lay next to me in bed. I told my sister that I was having shortness of breath. We called the nurse line and she stated I was having a Pulmonary Embolism and advise to go back to the hospital. I went back to the ER and they didn't attend me til the next day. I was in so much pain, I didn't understand what was going on. I was advise I was going to have in and out procedure nothing major but they were wrong. I was in ICU for 5 days, I had 5 different procedures. I was awake during all my procedures because the main head surgeon wanted to know my medical background and I advised him that I had a pituitary tumor, he was shocked and stated that it was good that I told him because he couldn't put me to sleep with anesthetic meds. The meds could make the tumor bleed. I felt awful through each procedure, but I just keep praying each time I went into surgery and during surgery since I was awake. The last surgery was awful because I could feel them cutting me, I started screaming and crying, the nurse in charge of the numbing medication didn't understand how I could fill the pain she just keep up dosing the numbing medication. I was so terrified from all of this I was afraid to go to sleep. I was on morphine for a week and also on sleeping meds to help me go to sleep. When I was released, I had to re-learn how to walk on my left leg again it was a challenge but my daughter Elissa , my sister Lisa and my boyfriend Zeke helped me through this. I couldn't believe this was happening to be I was only 25 years old, I had so many goals. Graduation day was 1 1/2 weeks away, my doctors said to take it easy, but I couldn't let my dream of walking down the stage pass me by, I worked so hard to get my associates degree. So from then on I always had either my boyfriend Zeke, my twin Lisa, or my daughter help me walk. When the day finally came, I told myself this is the day I've been waiting for. I walked down the stage with my head up high. I wanted to make my family proud, I had tears of joy. But, after that my life wasn't the same anymore I had to move in with my twin sister, I had so many doctors appts at least 2 every week. I couldn't find a job that would work around my appointments. I was also restricted from sitting down only 30 minutes at a time. I was still having trouble sleeping because I keep remembering the procedures. I still remember it as though it was yesterday.But, on Feb 2007 I did receive good news my pituitary tumor went away. My only focus now was staying therapeutic on coumadin. But, on April 2007 I started having the same exact heavy bleeding as before, but this time it was worst I couldn't get out of bed because blood would gush out I went to the ER and I was diagnosed with hemorraghia. Everything just seemed to get worst for me.I was taking depression pills and I just didn't feel good about myself at all. I figured maybe if I was off the coumadin than I wouldn't be depressed anymore. I convinced my doctor that this medication was taking affect over my life & my relationship. My doctor went ahead and took me off coumadin on Aug 2007, but she warned me if I had another blood clot I would be on coumadin forever. I was so happy, I started working again. My boyfriend, my daughter, and me moved into an apartment. Things seemed so much better without being sick. I wasn't worrying or depressed anymore. I felt like myself again. I never thought this would happen again. I found out I was pregnant on Nov 18, 2008, I took two pregnancy test and they both came out positive. I started worrying about the blood clots again, but I was like it won't happen to me again how could it. I started feeling leg pains for 3 weeks after, I had ongoing chest pain, but I didn't want to tell anyone about the pains because I didn't want to worry anyone I was in denial, I just keep telling myself somehow the pain would go away-maybe its just a heartburn. But, I was wrong on Dec 16, 2007 I had another PE attack. I was 12 weeks pregnant. I collapsed on my living room floor and woke up on my back I remember trying to get up but I kept falling down, it was hard for me to breath it felt awful. I had my purse right next to me and I called my sister & my boyfriend but I couldn't talk and they knew something was wrong. I called 911 and the ambulance was on their way and so was my sister. I was in ICU for 5 days and wasn't released til Dec 27, 2007. I was sad because I was spending my Christmas Day at the hospital, but I was happy that my boyfriend and my daughter were there with me and that my baby was okay. I was on ongoing lovenox shots throughout my pregnancy and it was painful. But, I kept telling myself to think positive. My babies and family are what made me strong. My son was born on June 16, 2008. He is my miracle baby. This time I am on coumadin forever, this is a challenge for me but I know if I stay strong I can overcome this.Update: I was recently diagnosed with 2 pituitary tumors and my ANA levels were high- I have to see an endocrine dr and rhematologist. Lately I have been very depressed.
Hello, my name is Ana Melendez and have 2 kids that I am truly blessed with they are the reason I look forward to tomorrow. I am a short sale specialist/customer service rep. I am so happy I found this website. I was always depressed because I didn't know anyone who understood what I have been going through.I was diagnosed with a Pituitary tumor on October 2004. Started taking cabergoline and had hemmoraghia due to this medication. I was prescribed to take birth control pills the last week of March
-
Interests
I love writing poems, love art, enjoy spending quality time with my family
I love writing poems, love art, enjoy spending quality time with my family
-
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
-
-
Dealing with Coumadin
October 11, 2008 3:48pm
Yesterday I received a call from doctor increasing my coumadin, because my inr was 1.6 I guess I'm not doing something right. Hopefully when I …
-
-
Hugbook
Flower
Have you found out what type of tumor the other one is yet?
I’m With You
Hi Ana, I hope you don't have to go back to Lovenox either. Boy do they sure hurt and I don't know about you but I am covered with bruising all over my abdomen between the shots and my surgical incision. I hope you are feeling well. :)
I’m With You
-
Prayer
thank you for your message i just feel heartbroken like y me y all of us my step uncle had one at 25 and not had one since he was 34 but unfortunately he passed away at 34 he died of heroin someone injected it in him while he was drunk im wooried when and if they take me off wartharin right now i know im safe but it does scare me as my aunt had a pe and my great grandad had a dvt but there are going to test me if i have it in my gene my doctor wrote anote telling them not to take me off wartharin till they do all the tests on me it is hard its very hard i want to see my kids grow up a lady i know only got them in her pregnacy which i did shes ok now she takes aspirin every day drink lots of water and excercises and does her heel toe when sitting or on along journey this has also put me off planes i wish there was adoctor on here
Prayer
Hi Ana.... just sending a prayer your way. Wow... you have been through a lot, but God obviously wants you around for awhile with your new precious baby! What a blessing. I pray that you will find answers to your questions and get the emotional support you need. We're all here for you. hugs to you!!
-
Photos
analilia hasn’t uploaded any photos yet
-
Advertisement -
Support Groups
Close Pulmonary Embolism
Hi, my name is Ana and I've had a DVT and 2 PE.I had my first episode of DVT on April 16, 2006, Easter Day.I had 5 surgeries, in ICU for a week. I stopped taking coumadin on Aug 2007.On Dec 16,2008 I had another PE.I was 12 weeks pregnant,in ICU for 5 days and hospital for 10 days.Baby was born on June 16,2008.I am on coumadin forever.I have 2 kids and blessed to have them in my life.Everyday is a challege with this medication but dealing with it and coping with it makes me a stronger person.
Treatments
Close Deep Vein Thrombosis (DVT)
I was diagnosed with a DVT on April 16, 2006.
Treatments
- Coumadin Working / Worked
- still on coumadin
- Heparin Working / Worked
- iv injection at the hospital April 2006 & Dec 2007
- Lovenox Working / Worked
- I was on lovenox injections on April 2006 for only 2 weeks. I had to get back on lovenox shots due to another PE Dec 16, 2007, but since I was pregnant I had to be on lovenox til June 15, 2008. I was on lovenox meds again on Sept 2008 due to shortness of breath.
Open Brain / CNS Tumors
Type: OtherI had an my first MRI on Dec 2004, I was diagnosed with a tumor on Feb 2005, I was on ongoing treatment with medication-cabergoline. It had MRI once a year and I was advise on Feb 2007 that my tumor went away. But, I since than have had several heachaes and pressure by my eyes, I had another MRI on March 4, 2009 and I was diagnosed with 2 pituitary tumors this time instead of one as before. I dont know what the outcome will be. I will see my endocrine dr on April 2, 2009.
Treatments
- Dostinex Working / Worked
- It worked but I didnt like the side effects it caused long bleeding and I eventually had blood clots and on warfarin forever now.
-
Groups
