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About Me
MoonLittleMoon
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About Me
finally diagnosed after two years! i have Pelvic Congestion Syndrome or Pelvic Venous Insufficiency & from this i have Postural Tachycardia Syndrome (POTS). ARTIST/DESIGNER/DANCER/PHOTOGRAPHER I am a dancer (dancesport: ballroom/latin) and salsa/zouk lambada/samba de gafieira/bachata/samba axe/argentine tango etc.. i teach and perform... south american music is a passion. i was born into an artist family, both my mother and father and other relatives are artists.. painters/designers etc. i myself love photography especially portraiture also shots of textiles and vintage type scenes, also pet photography (i freelance), im also a designer i design and make dance costumes.. i hope to start a swimware business. im synasthetic (synasthesia)... it's where you see letters and numbers in colours... also music and sounds etc. i love nature, animals.. especially my beautiful cat Gypsy, markets, jewelery, fabrics and SO SO much more!:)
finally diagnosed after two years! i have Pelvic Congestion Syndrome or Pelvic Venous Insufficiency & from this i have Postural Tachycardia Syndrome (POTS). ARTIST/DESIGNER/DANCER/PHOTOGRAPHER I am a dancer (dancesport: ballroom/latin) and salsa/zouk lambada/samba de gafieira/bachata/samba axe/argentine tango etc.. i teach and perform... south american music is a passion. i was born into an artist family, both my mother and father and other relatives are artists.. painters/designers etc. i myself
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Journal
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Hugbook
Thanks
Thanks for your support last night. x
Flower
OMG, w/o anestasia????? What are they, pain seekers??? Really what can they do as an encore performance? How are you today? Hope it goes better next time or is there a next time?
Take care Moon... Be well, as well as you can be. Tell them you can hurt on your own, you don't need their help...
Thinking of you.
Hug
Im so sorry to hear it ddint go well so what happens now, im here if you need to venty sweetie xoxox
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Sympathy
Yeah Dr X that I saw today was an Endocrinologist - first time I have seen one bizarrely. I wouldn't have minded if he had said: I don't know what is wrong with you so am going to do a lot of tests to isolate what it could be. But the blame my fatness - which I do not deny... am overweight... - for my growth... he's a retard! It's like the definitely one of the worst things I have had said to me from docs (and that's saying something!!).
So what is next step with you?
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Hug
Oh babe, that sounds like hell - your status. I don't like the idea of you being on the table for 2 hours whilst they do their thing... my mind is boggling in a not very nice way. I am just off to read your comment on my journal. x
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Photos
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Support Groups
Close Endometriosis
i dont have Endo i initially though i did, but i hang out here as there is no real support for pelvic venous congestion syndrome, and many ladies with endo also have this and it mimics endo
Close Migraine Headaches
severe migraines. had them my whole life, but since i got pelvic congestion syndrome i have a lack of upper body flow and it causes vascular migraines or cluster migraines...
Open Varicose Veins
i have them in my pelvis. pelvic venous congestion syndrome
Open Medical Mysteries
MoonLittleMoon hasn’t entered any details for this support group.Open Deep Vein Thrombosis (DVT)
MoonLittleMoon hasn’t entered any details for this support group.Open Trigeminal Neuralgia
MoonLittleMoon hasn’t entered any details for this support group.Open Hypermobile Syndrome
MoonLittleMoon hasn’t entered any details for this support group.
