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About Me
MoonLittleMoon
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About Me
finally diagnosed after two years! i have PELVIC VENOUS CONGESTION SYNDROME (pelvic varicosities)ARTIST/DESIGNER/DANCER/PHOTOGRAPHER I am a dancer (dancesport: ballroom/latin) and salsa/zouk lambada/samba de gafieira/bachata/samba axe/argentine tango etc.. i teach and perform... south american music is a passion. i was born into an artist family, both my mother and father and other relatives are artists.. painters/designers etc. i myself love photography especially portraiture also shots of textiles and vintage type scenes, also pet photography (i freelance), im also a designer i design and make dance costumes.. i hope to start a swimware business. im synasthetic (synasthesia)... it's where you see letters and numbers in colours... also music and sounds etc. i love nature, animals.. especially my beautiful cat Gypsy, markets, jewelery, fabrics and SO SO much more!:)
finally diagnosed after two years! i have PELVIC VENOUS CONGESTION SYNDROME (pelvic varicosities)ARTIST/DESIGNER/DANCER/PHOTOGRAPHER I am a dancer (dancesport: ballroom/latin) and salsa/zouk lambada/samba de gafieira/bachata/samba axe/argentine tango etc.. i teach and perform... south american music is a passion. i was born into an artist family, both my mother and father and other relatives are artists.. painters/designers etc. i myself love photography especially portraiture also shots of textiles
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Chocolate
god how annoying, ill keep my fingers crossed you will get it soon xoxox
I’m With You
Hey hun
I replied you on the TN thread.
I know what you mean about feeling behind. I feel exactly like that. Next year I will be 30, but haven't achieved the things I thought I would. I think milestones like these ridiculous birthdays make it seem all the more obvous because people tend to focus on what you have done and where you are at when you turn 30, 40, 50 etc.
The thing is, I then think... why do I feel behind? Is it because I am not achieving what 'I' want to achieve or is it because I feel like I am not achieving what I think other people think I should have achieved. I do think that, for me, there is a mixture of both. So I have been spending some time thinking about that and addressing it. I am not here to make other people happy in that sense... obviously it is nice to achieve things that help others to be happy, but my sole purpose is not to impress people or make them feel proud of me.
It is so frustrating about the doctors and the medical system. I don't really understand why these things are so difficult and complicated when you are sick and surely have the least reserves to be able to deal with them. I am glad you have a partner who is able to support you through this. I like to think that when things are made better for us with our health, we will look back at this as just a bad memory!!!
xx
Ray of Sunshine
Here's some sunshine to brighten your day.I can not believe you feel like this 2 years later.Did it just get worse as time went on?Do your legs literally have a greenish color to them?When is your surgery?Bad news for me CT scan denied.BUT doctor is going to order the d-dimer blood test which test for clots and DVT so if it comes back positive then they'll have to run any and all scans to find the blood clot or blockage.I hope you're feeling better.
Chocolate
Still no referall why not? you need it so badly to get well let me know how you go, im having tests tests and more tests. ill Pm you later, hope you are well, went to a awesome Pyschic today it was so good.....
Hug
Yes, you randomly found me on hollidays page - that's how this place often seems to work! We are drawn to people who can empathise I think.
I know, it's so horrible to be this age and to feel like life is passing you by whilst you are feeling so unwell and in so much pain. I think it helps to develop a different perspective on life. I guess I watch people a lot and I started to understand that we are raised to believe that life is all about one path - pretty much education, work/career, relationships and perhaps kids/family... when in reality there are so many of us who are so unwell that we are not able to follow that path. What are we meant to do? Just sit festering? I don't believe so, I think we can have alternative lifestyles where we can contribute to the world and society without even leaving our homes. I have been able to help so many people online who suffer from hair loss/alopecia. If I had never been in this situation, I would never have done that... so I guess there is a good side to all the bad.
It's just frustrating isn't it... like in a way I have had to redefine myself... and I continue to do that because people say: Oh what do you do? Then what are we meant to say: nothing?! It's a bit of challenge. I just hate waiting for all this hospital stuff - it's like your future is in the hands of someone else and you have no power. I guess it's the lack of power and control that I hate... I just want to get it sorted.
Sending you big hugs. xx
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Close Endometriosis
MoonLittleMoon hasn’t entered any details for this support group.Close Migraine Headaches
MoonLittleMoon hasn’t entered any details for this support group.Open Varicose Veins
pelvic venous conestion syndrome. cul de sac/pouch of douglas left iliac vein
Open Medical Mysteries
MoonLittleMoon hasn’t entered any details for this support group.Open Chronic Pain
MoonLittleMoon hasn’t entered any details for this support group.Open Deep Vein Thrombosis (DVT)
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