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About Me
ukkon
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About Me
I have had fibro for 14 yrs and just had ms ruled out at the Cleveland Clinic. I was just told I also have chronic fatigue syndrome and most likely small fiber neuropathy. I have been on a wild goose chase for a year and was also told I might have a muscle disease. I am so frustrated and feel I will never feel better
I have had fibro for 14 yrs and just had ms ruled out at the Cleveland Clinic. I was just told I also have chronic fatigue syndrome and most likely small fiber neuropathy. I have been on a wild goose chase for a year and was also told I might have a muscle disease. I am so frustrated and feel I will never feel better
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HI . OK NOW I NO WHAT IS UP.AN MRI ON YOUR SPINE IS A WASTE OF MONEY. NOW IF YOU HAVE A SPINAL TAP THAT SHOULD CONFO. OR A INVOC EYE TEST SO IF ANY TO OF THREE TEST ARE POS YOU DO HAVE MS AND THERE ARE OTHER TEST TO BUT NOT AS RELIABLE. MY FRIST MRI DID NOT SHOW ANY THING BUT YES I HAVE PPMS I HAVE BEEN ON ALL THE DRUGS THE LAST WAS CHEMO
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I CAN'T HELP IF YOU DON'T TELL ME SO HAVE YOU HADE A MRI AND HAVE YOU HADE A SPINAL TAP. AND YES YOU CANE HAVE MS AND NO LESSIONS. GET BACK TO ME ASAP THANKS
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HI, ROBB AGAIN HOW DID THEY GOME UP WITH THAT YOU DON'T HAVE MS WHAT TEST DID YOU HAVE. AND DID YOU EVER HAVE EPSTIEN BARR.
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WELCOME, HI MY NAME IS ROBB AND YES TO HAVING SYTOMS I STARED TO HAVE MY FIRST SYTOMS IN 1992.AND THEN IN 1997 I WENT TO MY DOCTOR AND STARTED SHOWING HIM SOM THINGS I THOUGHT WERE NOT NORMAL.STILL I GOT NOT MUCH OF A ANSWER MAKE A LONG STORY SHORT IN 2004 WENT BACK AND I TOLD HIM THAT I HAD MS HE STILL SAID I DON'T THINK SO SO I BET HIM 100 DOLLARS I DID SO MRI LATER AND HE CALLED ME BACK IN AND I THINK YOU ARE RIGHT. SO OFF TO A NERO AND HE STILL'S OWES ME THAT 100 BUCKS!!! IF YOU NEED ANY HELP JUST LET ME NO...ROBB LOL
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Close Myasthenia Gravis
I have been tested for MS, I was dx w/fibro in 1994-but as of 3 yrs ago have balance issues,twitching,muscle tightening,have had trouble in past w/swallowing,fatigue after very little physical work,facial fatigue and gum pain-being tested for MG again,so far 2 normal emgs and bloodwork taken again- i also have hyperreflexes-not sure if that fits in with MG-I am looking for any answers or similar stories of trying to get a correct dx and thank you in advance
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