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About Me
Jenkiff
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About Me
I was dx with multi centric castleman's disease 14 yrs ago,I have been undergoing tretment for that for the last five years with rutexin and just found out that I have poems disease which is very similair to mylemonia. It's pre mylanoma. I go into the hospital next week for a steem cell translant and I am scared. I have no idea what to expect. I am looking for support advice ect to help me through this new adventure.
I was dx with multi centric castleman's disease 14 yrs ago,I have been undergoing tretment for that for the last five years with rutexin and just found out that I have poems disease which is very similair to mylemonia. It's pre mylanoma. I go into the hospital next week for a steem cell translant and I am scared. I have no idea what to expect. I am looking for support advice ect to help me through this new adventure.
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I’m With You
Good luck . . . all will be well.
I’m With You
Good luck.
I’m With You
I'm here with you..
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I’m With You
Does this mean I won't have to listen to you complain allday you can just write down how bad you feel then I can read it (if I want to )LOL
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Support Groups
Close Multiple Myeloma
I hope you will all let me join I don't really belong anywhere. When I was 21 (14 yrs ago) I was dx with Multr centric Castleman's Disease (b9 lymphoma) and the CD has turned into P.O.E.M.S Disease (b9) Myeloma. They have given me a 5 year survival rate without treatment mostly bed ridden or to try the stem cell transplant and put both diseased into remission possible. Since alot of Myeloma patients have the stem cell tranplant I thought I might be able to get some advise and support.
