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  • About Me

    Image of MaryStone

    MaryStone

    Female, 66
    Roanoke, VA, USA
    Member since September 22, 2008

    • About Me

      After several years on 500 mg daily, I am suddenly having 20+ lightening bolts a day and I'm scared about the possibility of the Tegretol not working and being faced with surgery

      After several years on 500 mg daily, I am suddenly having 20+ lightening bolts a day and I'm scared about the possibility of the Tegretol not working and being faced with surgery

  • Recent Activity

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  • Journal

    • numbness

      Mood January 19, 2009 8:12pm

      It will soon be four months since my glycerol injection (Sept. 25) and my face is still numb, my head hurts in different places all day (sometimes …

    • December 15

      Mood December 15, 2008 7:03pm

      Flew back from Columbus to Baltimore today -- was so relieved to find that airplane pressure did not cause any more pain than normal.  I am …
    • Glycerol injection

      Mood October 2, 2008 3:44pm

      I had Glycerol Injection on September 25, and while I haven't had the major electric shock/lightning bolt fall=to=your=knees, I still have jabs …

    Read Journal

  • Hugbook

    Give MaryStone a hug



    • Hug

      From jady April 20

      hi how;s the painting going? find any interesting subjects? i am working on a venice italy picture and an auruoa bourielias picture. julie

    • Hug

      From hollidayddd March 31

      I think my neuro said the glycolic wouldn't help with the occipital neuralgia (the front of the eye area). I just don't what to say about that right now...

    • Hug

      From hollidayddd March 31

      Hi Mary! Yes, I don't know what happened but my cheek & jaw are really hurting. I could be a fool and it could be the combo of the nortriptapline/cymbalta that has been helping me all a long and not the muscle work and the nortriptaline may need to be upped. Well, I am sure the muscle work helps some. But i get this ache that feels like a deep bone rot in to my bones or skull and I have it in my jaw right now. I made the mistake of opening my jaw wide last night & any time I yawn it throws it in to wicked pain. I see my doc in friday and I am talking my husband w/me as back up for a good pain regimen. I need an MRI... How about you? Do you think the glycolic was a good choice? My previous doc pushed it on me but I was too nervous. I have had so many procedures go wrong. I even had a needless sinus surgery (to fix my face pain - NOT!) that was really heinous that took a good year to recover from and I know that it caused a lot of extra pain w/ me. Ouch, just talking about my pain hurts! Ahhh..... But I am thankful! I am reading... there are worse pains here on DS and worse problems. I hope you have fun with your grandbabies!!! My little Cassidy has copped an ATTITUDE. My kids become boogers at 4 (not 2 or 3). But she isn't getting away with anything. She won't go to the pool if she misbehaves and that is pure torture! So we will see how she is today ;o) Take care Mary, -Holliday

    • Ray of Sunshine

      From hollidayddd March 19

      I am doing good. I have been getting a good dose of sun each day (first I drink milk) because I have read that Vitamin D is so important for relieving pain. I think it works. I am certainly not the girl I was back in October and when I see a new person join and they are in horrific pain I really feel for them. The deep tissue work has really helped with my constant pain & I know I am driving some people crazy because they don't want to hear about it anymore. But, I had 8 years worth of eye pain that a good dozen doctors couldn't figure out and it is documented as a neck trigger point and if you have knots in your neck that aren't massaged out, you will have pain in your face (and eye). Picking up my little Cassidy all of the time can certainly cause knots in my body. I am also getting back in to shape with some more exercise. I have also been getting my girls more exercise. They have been swimming each day and jogging. I feel great about that. While I was so sick they were little shut-ins and they gained so much weight. They are little rolly-pollys and now I have to their weight off and mine ;o) But they love to move so I have that to work with. I hear you are painting? We are all artists in our house. We have a big art studio and that is where we spend our time. Art is the best thing in the world. I am finishing up my website & when it is polished I will send you my link. Take care, I hope you are feeling well? -Holliday

    • Hug

      From jady March 18

      good for you let me know how your painting is coming along. remember it'a a hobby and to enjoy it. julie

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  • Support Groups

    • Close Trigeminal Neuralgia

      I was diagnosed three years ago and did fine on 500 mg of Tegretol until Sept 21 when it hit me like gangbusters.

      Treatments

      Nerve Blocks Considering
      Glycerol injection: Still had shocks for two weeks or so. Face has remained numb for twelve weeks so far and it still doesn't stop pain in the head and occasional little shocks to lips, teeth, nostrils. etc. I haven't had the major electric shocks, thank goodness, so I guess it worked. scalp extremely sensitive. Nerves dance around in face but don't hurt yet
  • Friends


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