WHAT IF......
August 1, 2009 10:01pm
WHAT IF A LOT OF THE SYMPTOMS WE ALL HAVE BEEN SUFFERING FROM ARE LINKED TO VITAMIN D DEFICiENCY? WHAT IF ALL THE PAIN IN OUT TEETH AND NERVE RELATED …
jady
12:46pm, October 7, 2009
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About Me
jady
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About Me
have atypical trigeminal neuralgia left side of face for five years, motor cortex stimulator implanted three years ago at northwestern hospital in chicago. they came to my rescue. great doctor! did several years of meds, and other treatments before surgery to include nerve blocks, cranial sacrial therapy, chiropractic, homeopathic etc. mcs was the ticket for me. now have second condition on right side of face that has left me with PHN we're working on it. one day at a time!
have atypical trigeminal neuralgia left side of face for five years, motor cortex stimulator implanted three years ago at northwestern hospital in chicago. they came to my rescue. great doctor! did several years of meds, and other treatments before surgery to include nerve blocks, cranial sacrial therapy, chiropractic, homeopathic etc. mcs was the ticket for me. now have second condition on right side of face that has left me with PHN we're working on it. one day at a time!
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Interests
watercolor painting, scrap booking, love God family, people and traveling
watercolor painting, scrap booking, love God family, people and traveling
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Recent Activity
Recently:
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5 hugs given, 1 hug received, 1 journal comment
Yesterday
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jady and julieolson1988 are now friends 2:35am
Wednesday
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jady gave julieolson1988 a hug 3:03pm
see if your dr has a nurse practioner that is who discovered my d was too low and is working on vitamins…
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jady gave julieolson1988 an I'm with you 2:59pm
okay, lots in common here with you i have atypical pain trigeminal neuralgia so symptoms never leave.…
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jady gave Olwyn a prayer 2:48pm
just do today God holds tomorrow is His hands jady…
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jady gave judelew a hug 2:28pm
i have always heard if you have anything touching your tn nerve that the mvd prodecure might be an option…
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Journal
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This entry is private
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SPASMS!!!!!!!!
June 5, 2009 1:48pm
I DON'T KNOW WHERE THE HECK THESE SPASMS CAME FROM BUT I AM ABOUT READY TO LOOSE MY MIND. SIX WEEKS AGO I WAS SITTING IN ART CLASS. I JUST ATE …
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OH HAPPY DAY!!
June 1, 2009 12:00am
SO HAPPY ,,,I NOTICED MORE HEALING AROUND RIGHT SIDE OF MOUTH THE LAST FEW WEEKS. IT IS LIKE A UNEXPECTED GIFT!! DR R TOLD ME GIVE RAMSEY'S ABOUT …
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WHAT TN CANNOT DO.....
April 13, 2009 11:51am
IT CANNOT CRIPPLE LOVE
IT CANNOT SHATTER HOPE
IT CANNOT CORRODE FAITH
IT CANNOT EAT AWAY PEACE
IT CANNOT DESTROY CONFIDENCE
IT CANNOT KILL FRIENDSHIPS
IT …
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Thanks
Thanks for the support. It can be so hard when no one understands. Now that my d levels are up the fibro is not so bad and not so often. It does get ugly, saturday i could almost not walk with back pain and on sunday i was soo much better.
The Seelbac is an interesting place. My best friend had her wedding there and i was matron of honor. That place gives me the creeps. They say it is haunted. Some of the storys arent scary but funny like the bell man giving directions to a room # wearing a uniform form early 1900's. If you get a chance try The Galt House, the suites are amazing and they can have great rates. We stayed there after the ice storm. They give a special rate during emergencies. The place was packed but my kids had so much fun. The suite was bigger than most 1 br apt. We have lived here 11 yrs and still have not seen everything.
Thanks for sharing it helps to hear from others.
Let e know how things go with you. It is good not to feel alone. 
Flower
Thanks so much Julie. I will write again really soon. Your advice on the D is working. Today I woke up feeling part human. And I slept good after so long.:)
Thanks
Any prayers appreciated!
I am still waiting for referral to get the tests and diagnosis of whether there is a pituitary tumour. All roads point to the tumour because of the growth and enlargement of things... I am just disappointed I am having to wait so long to see an endocrinologist. It's the first step in what I have been warned (by other pituitary patients) is potentially a long road... but just to feel that I am moving forward, even if it takes a while... would be great!
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I'm going to keep looking into this. I may be wishful thinking, but it's worth a try.
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Thanks
Thanks Julie for all of your support. It means a lot, especially now.
Colleen
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Support Groups
Close Trigeminal Neuralgia
left sided tn year four. motor cortex stimulator implanted two years ago. doesn't work for everyone but they do a trial before they totally implant everything. did nerve blocks, all kinds of meds, chiropractic care, homepathic too. the mcs surgery was a life saver for me we found a program that really keeps the pain under control and i am on maint. doses of meds. stay out of stressful anythings and take care of my self. lots of rest vitamins etc. now i can function
Treatments
- Nerve Blocks Not Working
- problem with these injections is that it helps for a while but a lot of times the pain returns. my experience has been that steroids helps with imflammation and calms things down for a while but doesn't cure it. if you have classic tn it might make it remiss but i have atypical much harder to treat. i am for treatment that cannot damage the nerve any further.
Close Shingles
june came down with bell's palsy few day's later shingles broke out same side of face. behind ear at hairline i hsve ear damage. neur i see locally said he couldn't see in my ear at the time but it was red. i have sore spots on face above eye, side of nose, check. i would love to talk to someone who knows to heal or if there is a specific time of healing or what to expect/ i also have atypical trigeminal left side am managing pain well with motor cortex stimulator implant.
