I am a registered nurse, my father had mylodisplasia he died of a chest infection secondary to the mylodisplasia in october only seven months after we lost my Mum. Iam married with 2 children aged 12 and 8 i have no siblings. I joined daily strength for support for the mylodisplasia then the berevement support group.i have also joined th neurofibromatosis support gruop a condition inherited from my dad
I am a registered nurse, my father had mylodisplasia he died of a chest infection secondary to the mylodisplasia in october only seven months after we lost my Mum. Iam married with 2 children aged 12 and 8 i have no siblings. I joined daily strength for support for the mylodisplasia then the berevement support group.i have also joined th neurofibromatosis support gruop a condition inherited from my dad
I enjoy reading cooking eating out and spending time with friends and family oh and walking Zack my German Shepherd dog
I enjoy reading cooking eating out and spending time with friends and family oh and walking Zack my German
2 journal posts
maggieww wrote a journal entry: Journal Entry for November 4, 2009 7:27am
today a tv ad for letters to santa brought back a memory so painfull that even after all these years…
maggieww gave bbeauty25 a good luck wish 5:55am
hope all goes well with your surgery…
maggieww gave jibo a sympathy 1:41pm
take it one day at a time best wishes maggie…
November 4, 2009 7:27am
today a tv ad for letters to santa brought back a memory so painfull that even after all these years it made me cry.
When i was about six we …
October 17, 2009 1:53pm
tomorrow is the first anniversary of my dads daeth.
October 4, 2009 1:44pm
would you believe it my daughter went in a huff over the choice of new bath for our bath room. my husband and i are planning on doing up our bath …
October 2, 2009 6:25am
ok this is it i need to take steps 1. to get my cholesterol below 4. 2. to get my weight down im aiming for 28 lbs to start with after …
Thank you... yeah we've told her she can come back. She doesn't like the conditions though in either home. She's not willing to live by anyone's rules but her own. But that is something that nags at me everyday. I still remind her when I can contact her that it's up to her, but she has 2 homes. Thank you again...
Hope you feel better soon. Sending love and hugs to you.
about your parents
Thank you for your note of sympathy. I'm sorry about your loss. I am amazed my husband fought off several of them. Good luck in your journey.
I have had NF for my entire life. Do you have any kids?
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my mum died in march suddenly of a mi my dad in october of a chest infection secondary to mylodisplasia seemed to cope ok at first but just noe just keep wanting to cry at the least wee thing
i am 42 years old and have nftype1 i have thus far been mildly affected i have cafe au lait patches freckling in the axila and a few noticeable fibromas, i inherited it from my dad (now decesed nothing to do with Nf) he only showed symtoms in his forties but by the time he died last year he had very marked features of the condition, i appear to be following the same pattern i have 2 children whoes status is unknown
because a probelm shared is a probelm halfed from experience i Know that many parents experience the same problems and it dosent make you a bad parent.
