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About Me
tbfree
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About Me
Devoted mother of a wondferful 10 year old son. I have been very ill since a totally hysterectomy in 2004. I still try to stay positive no matter what!
Devoted mother of a wondferful 10 year old son. I have been very ill since a totally hysterectomy in 2004. I still try to stay positive no matter what!
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Journal
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Support Groups
Close Epilepsy & Seizures
I started having headaches in 2005 then developed brain lesions in 2006, more in 2007. Seizures started this summer. Two 3-4 minutes grad-mal about 4 hours apart. Strengths: 10 yr old son who is my rock! Incredible mom, great friends, family & boyfriend. Still no-one understands cuz I don't & can't explain. I hate all the meds!
Treatments
- Dilantin Working / Worked
- Used while in hospital
- Klonopin Not Working
- Lamictal Working / Worked
- allergic
- Neurontin Somewhat Helpful
- Doesn't sedate, but makes me angry beginning late afternoon. and it makes me talk too much - my mind doesn't shut down.
- Topamax Working / Worked
- taking 75mg Taking it for headaches too so...
- Trileptal Working / Worked
Close Migraine Headaches
Have been suffering from severe migraines which in turn have formed multiple brain lesions,caused several seizures,heavy neuro / cognitive issues.
Treatments
- Acupuncture Somewhat Helpful
- Avoid Certain Foods / Chemicals Working / Worked
- caffenine sometimes helps a little
- Excedrin Not Working
- Bad for you
- Imitrex Not Working
- never works - not strong enough
- Inderal Working / Worked
- Maxalt Working / Worked
- depends on how fast I catch it but usually the relief is only a few hours.
- Midrin Somewhat Helpful
- depending on how many I have
- Naproxen Somewhat Helpful
- Helps with my joint pain
- Topamax Somewhat Helpful
Open Interstitial Cystitis (IC)
I was diagnosed with IC after a Total Hysterectomy. Because of the surgery my bladder became hypersensitive to everything & I had constant bladder spasms w/ the constant feelings of UTI symptoms.
Treatments
- Elmiron Working / Worked
- Been on it since 2005 - it normally helps control my symptoms. I definitely have to take it twice a day or my bladder spasms come back strong.
Open Post-Traumatic Stress Disorder
Trauma from a surgery about five years ago pretty much did me in but it's just been figured out. Everything has been based on my medical when all along I was sufferering so much emotionally, mentally & socailly. The world just became more frighten everytime I would close my eyes. That's why....
Treatments
- Art Working / Worked
- It allows me to express myself in whatever way I want, when my body. The freedom of art is incredible, it just flows, mostly when you are scared of your own shadow.
- Cognitive Behavioral Therapy Working / Worked
- I have done this for depression but not PTSD
- Inderal Not Working
- Tried this drug before I ever new I had PTSD. I actually was being treated for my neurology problems.
- Music Working / Worked
- Use to love it before my 2 huge seizures but none I have a diffucult time with stimulation. I can take very little at one time.
- Psychotherapy Working / Worked
- every 2 weeks
- Reading Working / Worked
- If my migraines allow me to I love to read different things. Short reads; new learning; new interest
- Supportive Care Working / Worked
- Me & my son go to church every Sunday. That's the biggest support besides family. Because I tend to push the people I care about away.
- Talking Working / Worked
- At least once every 2 weeks
- Topamax Working / Worked
- I take this now for my migraines & seizures
- Zoloft Working / Worked
- Was on it a very long time time ago & it worked for occassional depression & stress.
