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About Me
Viktoria66
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About Me
I am a mother of 4 grown daughters my twins will be 18 in nov.and i have a 20 and 21 year old and i have 2 grandchildren and I am happily married to Stephen... I have Mastocytosis and Ehlers Danlos ...The masto was brought on due to complications from EDS because as we know there can be many medical problems involved here and to be checked and to watch out for...I have my good days and i have more bad days....but when i do have thee good days i aprechiate it greatly...I am having bouts now for thee last couple months with Vertigo/Motionsickness i have always had fluid build up in my ears and swelling from my mast cells which complicated with EDS AND with Mastocytosis thee mast cells are the largest cell in thee connective tissue...and i guess my likes to go haywire....All over body pain on days can really test your limits...and that i have...also have alot of problems with my hands/ wrists and forearms horrible pain and i get the fleshy swollen lumps on both arms ....very frustrating trying to do daily tasks with such pain in thee arms....but .BIO-Freeze is my best friend...LOL.....i manage..Like to meet others with thee same ailments and exchange helpful information... and i am fortunate to have such a wonderful husband that helps me out....
I am a mother of 4 grown daughters my twins will be 18 in nov.and i have a 20 and 21 year old and i have 2 grandchildren and I am happily married to Stephen... I have Mastocytosis and Ehlers Danlos ...The masto was brought on due to complications from EDS because as we know there can be many medical problems involved here and to be checked and to watch out for...I have my good days and i have more bad days....but when i do have thee good days i aprechiate it greatly...I am having bouts now for thee
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Interests
Researching on the internet... Music..Photography..Gardening...which i don't get to do to much anymore...
Researching on the internet... Music..Photography..Gardening...which i don't get to do to much anymore...
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Support Groups
Close Ehlers-Danlos Syndrome
EDS Confirming and see what type going to Genetics Dr. in December
Close Medical Mysteries
I have Mastocytosis And EDS
Open Chronic Fatigue Syndrome
I have Mastocytosis and Ehlers Danlos ...The masto was brought on due to complications from EDS
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