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tigerlilymel 
8:37am Yesterday
I have to stop the Humira injections. I was experiencing some neurological side effects and my GI was concerned it could lead to something serious. This is especially sucky because I don't know what the next step is. I have options, and here they are:
-Go back to Prednisone and see if that keeps me in remission...but I hated those steroids with a passion. I gained weight and had a whole heap of side effects with that shit.
-I can go without medication and see what happens. Maybe I will stay in remission for a while and won't need medication for a while..or maybe I will become ill again and be back to square one...which could mean steroids or surgery.
-Surgery...but that's probably a last resort option.
I am just so frustrated with everything. Humira helped me so much and now that it has been taken away from me I don't know what to do. I can't get on Remicade or Cimzia because they are in the same class as Humira and chances are it wouldn't help. I have a doctor appointment in early June and I guess we will figure something out then. I just hope I find something else that works. I'm pretty sick and tired of being sick and tired.
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Hey Melissa,
I'm so sorry you are going through this. That is really shitty.
First, does your doctor realize that you stopped your meds and you haven't been able to get in until JUNE!? I'd be telling my doctor to fit me in the next day so that you don't run the risk of entering a flare up and then what!!? And I'd be totally pissed if they wouldn't fit me in!! I switched doctors at the beginning of this flare over one pulling that crap- there's no way you should be made to sit around and wait in this situation.
I guess with those choices on what to do, quality of life either way can have huge defecits. At least with the steroids its more along the lines of being miserable but being able to live your life somewhat normally. On the other hand maybe you can do a run of steroids and start to try to do more things along the lines of herbs and diet to keep things under control? Just use the steroids to bridge into that type of lifestyle?
My doctor just put me on a probiotic formula called Align. You can get it at CVS drugstores over the counter. It's a little expensive ($30/28 pills), but I am convinced that it is 100% responsible for a DRASTIC turnaround I've had in the past few days. We were scraping the bottom of the barrel on options as well with the Remicade vs. Humira thing (and I'm hoping to avoid both now) and she threw it out there as a "don't get your hopes up, but maybe this will help" and it does, and it's the only thing that has. It helped me within 3 days of me starting it. I hope you can give it a try and I REALLY hope it helps you. Even if you go without medication you can take alot of natural over the counter things that may help- ginger, chlorophyll, aloe vera juice, boswellia extract, other probiotics.
Don't lose hope. Don't let it win. Focus your energy on healing. I'm REALLY thinking positive thoughts for you.
-Kelsey
kelseyx007