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tigerlilymel 
8:37am Sunday
Well I am tapering down 10mg of prednisone every 3 days. Right now I am at 60. Ugh. I feel like this is never-ending. I am stopping at 40mg until the Imuran kicks in. I really hope I can get relief from it! After my colonoscopy I need it. My doctor found two fistulas that were pretty bad, but he didn't discuss relief with me. Other than that he said that the Crohn's had progressed and spread. I feel hopeless right now. Constantly in pain and I HATE having BM's that are strictly puss, blood and mucus. It's disgusting and I feel awful. Because of my job duties and how awful my immune system is anyways, I have to find a new career route. I can't stay in healthcare while on Imuran for fear of getting really really sick. So now I have to look for another job. I have no idea where to start or what to do...I can do retail, but that requires being on my feet and with this diseae (plus my endo!) that is just HARD. I just need clarity and guidance. Something will turn up, I hope. I did apply at the TMOBILE call center here in town, but I haven't heard anything yet. Hopefully I do. It wouldn't be my IDEAL job, but it pays well and it would require me sitting down. Which is nice. Anyways I guess I am done venting. I just feel hopeless right now.
Comments
just wanted to send you a big hug! Hey- have you talked with your Dr. about changing your career path? I'm on Remicade and I'm able to stay in the health care field... I'm an RT- so work with some fairly nasty crap- so far so good... though, I know your job requires some lifting,etc.- mine doesn't... but my Dr's were confident that we could keep my meds at a level that would keep the CD at bay- with out compramsising my immune system too much. For me the pred did more to my lab work and immune system than the Remicade has... will keep my fingers crossed for you with the TMobile job-- you need to be off your feet for a while, at least.... insurance would be nice too....... Hugs- hate to hear about the fistulas.... :(
tiredtummy
in your journal pet you wrote you have no idea where to start... pray!! I am praying that God will just give you a peace and acceptance, that at this moment you are feeling crap, but you have a great blessing to come. When i am feeling very poorly and have realised too that i need a new career and job, it is so hard at this age to accept that what else might happen or when will this end. It will end and i have every hope and surity that God will get you through. While you are looking for a new job (which at the end of the day, is not your life) look for a hobbie, something you enjoy doing that you can do. Don't get upset about the job sweetie because really what is most important is you getting better and enjoying the rest to get better, then you can begin to look for something , ok , it may not be what you would like, but living your life as best and fun as you can is so much more exciting and fullfilling than a career. look after yourself and every joy and happiness WILL follow. God bless you sweet you are in my prayers.. big hugsxx
con24
Don't feel hopeless, things will get better as I have been there so many times, hang in there.
marcie54