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  • About Me

    Image of tigerlilymel

    tigerlilymel

    Female, 22
    Monmouth, OR, USA
    Member since September 13, 2008

    • About Me

      My name is Melissa. I was diagnosed with Endometriosis when I was 14. I have had 6 surgeries for the disease and am currently on constant pain meds and birth control to suppress it. It bothers me daily and nothing has helped, but I have bigger things to worry about. Two years ago (almost 3) I was diagnosed with Crohn's disease in the terminal ileum. I went into remission after my diagosis (I also quit all of my meds back then cold turkey.dumb, I know) and for two years was pain free and symptom free. Then in August, I went in a severe flare and have been in it ever since. I am currently taking Asacol (two pills, three times a day), and darvocet for pain. I was on Prednisone for 6 months, but have finally tapered off of it. Yay! Now I have just started Humira injections. I don't have health insurance so the pharmaceutical company has given me the medicine free of cost! I am so hopeful that this will be the drug to put me into remission. oh, my most recent colonoscopy showed I have three fistulas going from the anus to the beginning of my large instestines....awesome, right? At 22 years old I don't know how much more I can take!!!!!!!

      My name is Melissa. I was diagnosed with Endometriosis when I was 14. I have had 6 surgeries for the disease and am currently on constant pain meds and birth control to suppress it. It bothers me daily and nothing has helped, but I have bigger things to worry about. Two years ago (almost 3) I was diagnosed with Crohn's disease in the terminal ileum. I went into remission after my diagosis (I also quit all of my meds back then cold turkey.dumb, I know) and for two years was pain free and symptom free.

    • Interests

      I definitely enjoy reading, writing and EATING haha. Watching movies, shopping and hanging out with friends are also things I enjoy.

      I definitely enjoy reading, writing and EATING haha. Watching movies, shopping and hanging out with friends

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • my new blog

      Mood August 21, 2009 10:16pm

      I started up a blog for those who are searching for more guidance with their lives suffering from crohns and endometriosis. i am open to suggestions …

    • This entry is private

    • so weird

      Mood August 8, 2009 11:59am

      thanks for all the hugs in my hugbook everybody!! i have a lot to reply to so for now here is a giant HUG and THANK YOU from me to all of my …

    • when does it end?

      Mood August 7, 2009 1:11pm

      i am beginning to think my doctors are out to get me. so the cimzia is out the window. i did my first injection of methotrexate on wednesday morning. …

    • This entry is private

    Read Journal

  • Hugbook

    Give tigerlilymel a hug



    • Flower

      From ZenEm October 17

      Hey Mel - how's the methotrexate going? I've been thinking of you. I hope you're doing ok.
      xxoo

    • Hug

      From tiredtummy September 7

      that wig makes me want to shave my head.. so you! I'm doing crappy- the arthritis with this flair is awful- hoping the Humira works.... you look like you are off Pred too? How's the endo going? I'm so reliveved to see you looking/sounding better- for a while there I was really worried about you.

    • Shout Out

      From tiredtummy September 7

      Love the new "do"-have you been able to grow your hair back in, or just found a perfect wig? You look really good. I haven't been on in a while- so I'm behind on what's been goin gon with you... I saw you are starting methotrexate (dont' laugh at my feeble attempt to spell it)- did the Humira not cut it for you, or did you start reacting? I'm suposed to start it on the 15th- I'm nervous, but desperate.....

    • Hug

      From drivethrublondie August 8

    • Hug

      From rmb August 3

      Hey, was just reading one your posts and noticed how freakin' cute your hair looks. I know telling you that does not help with how crappy you feel right now. Wish I had something better than "nice hair." It really is cute, though.

      Hope you get some answers soon!

    Read Hugbook

  • Goals

    Progress

    10 %

    Goal End Date is Jul 31, 09 100 days ago.
    Current Weight (Lbs)
    159.9
  • Support Groups

    • Close Crohn's Disease & Ulcerative Colitis

      I was diagnosed three years ago. Right now I am very very sick from it and I am just scared about the possible outcomes.

      Treatments

      Asacol Working / Worked
      Took it when I was first diagnosed, then I quit it cold turkey, went into remission. Now that I am in a flare, I think it is helping. But I ahve been in a flare for four months now, so who knows.
      Avoid Certain Foods / Chemicals Working / Worked
      I am avoiding spicey foods, dairy and fresh fruits/veggies. So far if I avoid those things I am in the bathroom less and less.
      Azathioprine Not Working
      I was only able to take this medication for two months. I began to get tremors from it, to the point where I could not talk or tie my shoes.
      Prednisone Working / Worked
      It does help, and unfortunately my body is 'steroid dependent'. I have managed to taper off the medicine, but I am still in a flare.
      Humira Too Soon to Tell
      I am about to give myself the 2nd injection...so I am hoping it will be my savior!
    • Close Endometriosis

      Diagnosed when I was 14. Still struggling with it to this day. Nothing seems to be helping.

      Treatments

      Aygestin Not Working
      It didn't help.
      Extended-Cycle Birth Control Not Working
      I cannot stand it.
      Laser Surgery Working / Worked
      It seems to be the only temporary fix.
      NuvaRing Not Working
      Currently using. I hate it. It makes all of my symptoms worse.
      Ortho Evra Not Working
      DID NOT WORK
      Surgery Working / Worked
      Only thing that helps me.
    • Open Chronic Pain

      Treatments

      Heat Not Working
      Hydrocodone Working / Worked
      Marijuana Somewhat Helpful
      Naproxen Not Working
      Oxycodone Working / Worked
  • Groups

  • Friends


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