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  • About Me

    Image of tigerlilymel

    tigerlilymel

    Female, 22
    Monmouth, OR, USA
    Member since September 13, 2008

    • About Me

      My name is Melissa. I was diagnosed with Endometriosis when I was 14. I have had 6 surgeries for the disease and am currently on constant pain meds and birth control to suppress it. It bothers me daily and nothing has helped, but I have bigger things to worry about. Two years ago (almost 3) I was diagnosed with Crohn's disease in the terminal ileum. I went into remission after my diagosis (I also quit all of my meds back then cold turkey.dumb, I know) and for two years was pain free and symptom free. Then in August, I went in a severe flare and have been in it ever since. I am currently taking Asacol (two pills, three times a day), and darvocet for pain. I was on Prednisone for 6 months, but have finally tapered off of it. Yay! Now I have just started Humira injections. I don't have health insurance so the pharmaceutical company has given me the medicine free of cost! I am so hopeful that this will be the drug to put me into remission. oh, my most recent colonoscopy showed I have three fistulas going from the anus to the beginning of my large instestines....awesome, right? At 22 years old I don't know how much more I can take!!!!!!!

      My name is Melissa. I was diagnosed with Endometriosis when I was 14. I have had 6 surgeries for the disease and am currently on constant pain meds and birth control to suppress it. It bothers me daily and nothing has helped, but I have bigger things to worry about. Two years ago (almost 3) I was diagnosed with Crohn's disease in the terminal ileum. I went into remission after my diagosis (I also quit all of my meds back then cold turkey.dumb, I know) and for two years was pain free and symptom free.

    • Interests

      I definitely enjoy reading, writing and EATING haha. Watching movies, shopping and hanging out with friends are also things I enjoy.

      I definitely enjoy reading, writing and EATING haha. Watching movies, shopping and hanging out with friends

  • Recent Activity

    June 20

    • tigerlilymel wrote a journal entry: teeth update 8:55pm

      well the wisdom tooth extraction didnt go too well. they got all four but on the trouble one they had…  

    June 17

    • tigerlilymel wrote a journal entry: hi 10:28pm

      well it's been a while since i have been on, so sorry! i need toreply to my hug book and messages.…  

    February 18

  • Journal

    • teeth update

      Mood June 20, 2009 8:55pm

      well the wisdom tooth extraction didnt go too well. they got all four but on the trouble one they had to take pieces of my jaw out and dismantle it. …

    • hi

      Mood June 17, 2009 10:28pm

      well it's been a while since i have been on, so sorry! i need toreply to my hug book and messages. anyways things havent beengoing so well. my GI …

    • YAYAYAYAYA

      Mood May 14, 2009 11:43pm

      I got the job at the state hospital!!! This means insurance and great pay. MY LIFE IS CHAGNED. I am so happy
    • well..crap

      Mood May 14, 2009 2:35pm

      I have to stop the Humira injections. I was experiencing some neurological side effects and my GI was concerned it could lead to something serious. …

    • weight loss update

      Mood April 22, 2009 2:56pm

      Well for a few days I was really into the pilates (every other day because it was way too intense for an every day thing to start) and yoga, and then …

    Read Journal

  • Hugbook

    Give tigerlilymel a hug



    • Little Love

      From binetp June 14

      Sending you a little love I have been gone for a little while the end of school is so time consuming with field-trips etc. Hope you are doing okay and I am sending healing energy your way. love, binet

    • Rainbow

      From ZenEm June 7

      Hey Melissa, sending you some hugs and love and hoping you're doing ok right now. Ick to the prednisone - I'm still trying to avoid going back on that :S
      *hugs* xxoo

    • Hug

      From con24 June 6

      hi melissa, i havent had a chance to talk with you for ages..... months in fact!!! how are you? the last we spoke you were not very well, on stroids etc.. how have you been?? get through the winter ok?? hope you are much improved and be intouch to let me know how you are xxx

    • Ray of Sunshine

      From chelsea7 June 5

      Have a great weekend!!! :D

    • Hug

      From Courts27 May 30

      Hey girl. Don't give up, you can conquer this! I've only had UC for like three months but its been hell. I'm young and I've had to change my entire life plus I've lost so many friends because they just don't get it. The best solution I've found so far isn't meds, but learning how to manage stress. Its been proved a major factor in UC and when you get ahold of your life it feels great. So stop worrying bout the drugs, let your gastro do what they think is best, and go take a bubble bath and light some candles. Turn on your favorite song and dance like no ones watching. Just cause we have this disease doesn't mean we can't live our lives. Hell we probably know how to live it better than anyone else. Good luck and if you need someone, ever, I'm here :)

    Read Hugbook

  • Goals

    Progress

    5 %

    Goal End Date is Jul 31, 09 26 more days.
    Current Weight (Lbs)
    159.9
  • Support Groups

    • Close Crohn's Disease & Ulcerative Colitis

      I was diagnosed three years ago. Right now I am very very sick from it and I am just scared about the possible outcomes.

      Treatments

      Asacol Working / Worked
      Took it when I was first diagnosed, then I quit it cold turkey, went into remission. Now that I am in a flare, I think it is helping. But I ahve been in a flare for four months now, so who knows.
      Avoid Certain Foods / Chemicals Working / Worked
      I am avoiding spicey foods, dairy and fresh fruits/veggies. So far if I avoid those things I am in the bathroom less and less.
      Azathioprine Not Working
      I was only able to take this medication for two months. I began to get tremors from it, to the point where I could not talk or tie my shoes.
      Prednisone Working / Worked
      It does help, and unfortunately my body is 'steroid dependent'. I have managed to taper off the medicine, but I am still in a flare.
      Humira Too Soon to Tell
      I am about to give myself the 2nd injection...so I am hoping it will be my savior!
    • Close Endometriosis

      Diagnosed when I was 14. Still struggling with it to this day. Nothing seems to be helping.

      Treatments

      Aygestin Not Working
      It didn't help.
      Extended-Cycle Birth Control Not Working
      I cannot stand it.
      Laser Surgery Working / Worked
      It seems to be the only temporary fix.
      NuvaRing Not Working
      Currently using. I hate it. It makes all of my symptoms worse.
      Ortho Evra Not Working
      DID NOT WORK
      Surgery Working / Worked
      Only thing that helps me.
    • Open Chronic Pain

      Treatments

      Heat Not Working
      Hydrocodone Working / Worked
      Marijuana Somewhat Helpful
      Naproxen Not Working
      Oxycodone Working / Worked
  • Groups

  • Friends


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