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  • About Me

    Image of tigerlilymel

    tigerlilymel

    Female, 22
    Monmouth, OR, USA
    Member since September 13, 2008

    • About Me

      My name is Melissa. I was diagnosed with Endometriosis when I was 14. I have had 6 surgeries for the disease and am currently on constant pain meds and birth control to suppress it. It bothers me daily and nothing has helped, but I have bigger things to worry about. Two years ago (almost 3) I was diagnosed with Crohn's disease in the terminal ileum. I went into remission after my diagosis (I also quit all of my meds back then cold turkey.dumb, I know) and for two years was pain free and symptom free. Then in August, I went in a severe flare and have been in it ever since. I am currently taking Asacol (two pills, three times a day), and darvocet for pain. I was on Prednisone for 6 months, but have finally tapered off of it. Yay! Now I have just started Humira injections. I don't have health insurance so the pharmaceutical company has given me the medicine free of cost! I am so hopeful that this will be the drug to put me into remission. oh, my most recent colonoscopy showed I have three fistulas going from the anus to the beginning of my large instestines....awesome, right? At 22 years old I don't know how much more I can take!!!!!!!

      My name is Melissa. I was diagnosed with Endometriosis when I was 14. I have had 6 surgeries for the disease and am currently on constant pain meds and birth control to suppress it. It bothers me daily and nothing has helped, but I have bigger things to worry about. Two years ago (almost 3) I was diagnosed with Crohn's disease in the terminal ileum. I went into remission after my diagosis (I also quit all of my meds back then cold turkey.dumb, I know) and for two years was pain free and symptom free.

    • Interests

      I definitely enjoy reading, writing and EATING haha. Watching movies, shopping and hanging out with friends are also things I enjoy.

      I definitely enjoy reading, writing and EATING haha. Watching movies, shopping and hanging out with friends

  • Recent Activity

    Recently:

    • 3 hugs received, 1 advice post, 1 hug given

    Today

    • tigerlilymel wrote a journal entry: good news i think 2:17pm

      well my MRI didnt show i had adenomysis. so basically my OBGYN said he wants to see me dec. 8th and we…  

    Sunday

    November 8

  • Journal

    • good news i think

      Mood November 21, 2009 2:17pm

      well my MRI didnt show i had adenomysis. so basically my OBGYN said he wants to see me dec. 8th and we are going to discuss a surgery, most likely a …
    • sorry for the hiatus!

      Mood November 8, 2009 10:08pm

      well not much is new here. well, sort of. i am not sure. i work too much and sleep too much. i am currently taking methotrexate injections once a …

    • my new blog

      Mood August 21, 2009 10:16pm

      I started up a blog for those who are searching for more guidance with their lives suffering from crohns and endometriosis. i am open to suggestions …

    • This entry is private

    • so weird

      Mood August 8, 2009 11:59am

      thanks for all the hugs in my hugbook everybody!! i have a lot to reply to so for now here is a giant HUG and THANK YOU from me to all of my …

    Read Journal

  • Hugbook

    Give tigerlilymel a hug



    • Get Well Soon!

      From BSPUNKY Thursday

      Good Luck what you decide to do about your surgery. Big Hug

    • Funny Face

      From dreamtime Sunday

      i got to that stage that nothing else helped either...i hope you get the news you want from the MRI can like i say im here and im a good listerner its 3.13am here so not the best of nights really but im about to go to bed now. pls if u have any questions or anything just send me a message and i cant wait to get to know you and find a new friend...love claire x

    • Flower

      From dreamtime Sunday

      mel i just read yr post only you know if you can put up with the pain and all the other major problems you have now. myself i couldnt so at 26 i had a full and total hysterectomy and my op was at 1pm by 7pm i was walking about watching a soap and i was crying laughing screaming you name it with the emotions but i didnt look back. yeah a year ago i hit depression though wanting a baby but my life story explains some of that to pls feel free to have a look at my page, i made the right choice FOR me no matter how much i want kids i could never have coped with the endo ect...not sure if you mean the 16 tgoday you are having yr MRI pls let me know how it goes and im here if u want to keep in touch. God bless you hun he will guild you to the right choice for you. take care. i'll be here to walk with you if u need a friend?

    • Flower

      From ZenEm October 17

      Hey Mel - how's the methotrexate going? I've been thinking of you. I hope you're doing ok.
      xxoo

    • Hug

      From tiredtummy September 7

      that wig makes me want to shave my head.. so you! I'm doing crappy- the arthritis with this flair is awful- hoping the Humira works.... you look like you are off Pred too? How's the endo going? I'm so reliveved to see you looking/sounding better- for a while there I was really worried about you.

    Read Hugbook

  • Goals

    Progress

    10 %

    Goal End Date is Jul 31, 09 114 days ago.
    Current Weight (Lbs)
    159.9
  • Support Groups

    • Close Crohn's Disease & Ulcerative Colitis

      I was diagnosed three years ago. Right now I am very very sick from it and I am just scared about the possible outcomes.

      Treatments

      Asacol Working / Worked
      Took it when I was first diagnosed, then I quit it cold turkey, went into remission. Now that I am in a flare, I think it is helping. But I ahve been in a flare for four months now, so who knows.
      Avoid Certain Foods / Chemicals Working / Worked
      I am avoiding spicey foods, dairy and fresh fruits/veggies. So far if I avoid those things I am in the bathroom less and less.
      Azathioprine Not Working
      I was only able to take this medication for two months. I began to get tremors from it, to the point where I could not talk or tie my shoes.
      Prednisone Working / Worked
      It does help, and unfortunately my body is 'steroid dependent'. I have managed to taper off the medicine, but I am still in a flare.
      Humira Too Soon to Tell
      I am about to give myself the 2nd injection...so I am hoping it will be my savior!
    • Close Endometriosis

      Diagnosed when I was 14. Still struggling with it to this day. Nothing seems to be helping.

      Treatments

      Aygestin Not Working
      It didn't help.
      Extended-Cycle Birth Control Not Working
      I cannot stand it.
      Laser Surgery Working / Worked
      It seems to be the only temporary fix.
      NuvaRing Not Working
      Currently using. I hate it. It makes all of my symptoms worse.
      Ortho Evra Not Working
      DID NOT WORK
      Surgery Working / Worked
      Only thing that helps me.
    • Open Chronic Pain

      Treatments

      Heat Not Working
      Hydrocodone Working / Worked
      Marijuana Somewhat Helpful
      Naproxen Not Working
      Oxycodone Working / Worked
  • Groups

  • Friends


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