Imagine Living With RSD...
February 5, 2009 2:04am
The following is something I wrote to try and help others understand what it is like to live every day in excruciating pain...
The morning comes …
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Cafa
12:12am, December 22, 2008
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About Me
Cafa
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About Me
I’m Caf and I’m currently in the midst of a case of chronic ridiculousness! I live in Melbourne, Australia and I suffer from Reflex Sympathetic Dystrophy (RSD), which I developed after wearing high heels to the races 2 years ago…my condition also goes by another name, Complex Regional Pain Syndrome (CRPS). RSD is a neurological condition that involves constant pain that can burn, stab, sting and cause affected areas to swell and change colour. I know, sounds great, huh? I hope that by sharing my experiences I can help to spread awareness of this horrible and poorly understood condition. Stuck at home, I have been getting in touch with my creativity by experimenting artistically. I'm currently specialising in handmade handbags when these silly legs are OK for sewing and all sorts of drawing and painting when they are not. I write down rhymes from time to time and I always have room for more like-minded blog buddies so don't be shy about saying hi! See what I've been up to at http://rellacafa.com
I’m Caf and I’m currently in the midst of a case of chronic ridiculousness! I live in Melbourne, Australia and I suffer from Reflex Sympathetic Dystrophy (RSD), which I developed after wearing high heels to the races 2 years ago…my condition also goes by another name, Complex Regional Pain Syndrome (CRPS). RSD is a neurological condition that involves constant pain that can burn, stab, sting and cause affected areas to swell and change colour. I know, sounds great, huh? I hope that by sharing my
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Interests
Spreading awareness of RSD/CRPS
Spreading awareness of RSD/CRPS
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Recent Activity
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Journal
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Pictures of RSD @ Rellacafa's New Home!
January 25, 2009 1:37am
I’ve worked pretty hardAnd I’m finally doneThe battle with codeI eventually wonNow for my troublesI have a …
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My Reflex Sympathetic Dystrophy (RSD) Story part 5
January 12, 2009 8:03pm
Just as I was recovering in the hipMy body took another slipThis time striking me in the jawWith I not knowing whatever …
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Living With RSD #1: The Hand Flare
January 6, 2009 8:15pm
A sidestep from my story vidsBecause my hands have hit the skidsA little look inside the painTo where I’m waiting, …
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Welcoming 09 With a Bang and a Mic
January 1, 2009 11:23pm
Shedding off 08 involvedThe problem of my pain being solvedWith a glass of wineOr maybe more….With enthusiastic sing …
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Hugbook
Celebration
Caf...i live in New Jersey in the good old US of A! If you are ever over here you must come and visit. Hope you are feeling well today. started aqua therapy today...the water felt great. anyway honey hope you have a very happy, healthy, pain free New Year.
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Hug
Hey Caf...so glad to hear from you! Merry Christmas to you honey bun. I had no clue number one that you were from Australia and number two had talented you and gifted you are. You are amazing girlfriend. I just finished watching your videos and than went and read your blog page and had no clue you painted and sewed. I give you a lot of credit for working with your hands and then being in so much pain and all...God bless you. I am in awe - really. I am just kinda bummed right now. I am hurting and feeling alone. It just seems like everyone is always busy and running around and I just stay home because of the pain and limits. I forget exactly when you are going for the ketamine, so let me know when that is? The PM doctor I last went to doesn't do the ketamine infusion. I don't think it's very popular around here. I hope it helps you sweetie. I wish we could talk one of these days. Be well and I wish you a pain-free day and lot's of distractions...lol. love, Carol xxxxxooooo
Hug
I'm here for you if you need me. I know what it's like.
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Hug
Hey Caf, how are you? Just read that you are going for the Ketamine...how are you feeling about it? I went to an RSD support group finally! It's only once a month but I needed to meet others with it. Let me know what's going on and how you are feeling? If you want to talk I will send you my number. I hope you are hanging in there sweetie. Peace, Carol
Present
Hey there! I think it is sooooo important that people like you and Sarah post videos so people can *SEE* what RSD is like. I think every CP patient should do so, if possible. That way, people without pain can see what the day to day existence of someone with severe CP issues is like...how it sends your personality, your dreams, and basically YOU, into hibernation while the illness crushes you mercilessly. That's very interesting about the coma being an actual treatment!! I had no idea! Do you know what the stats are as far as a cure rate? As for my condition, there are several treatments, but only one treatment will bring you back to your former level of function and make you pain free. It's called prolotherapy. It takes a loooooooong time and is DEFINITELY no picnic. HA! The treatment itself is painful - not just on the day of treatment, but for weeks afterward. Unfortunately, the healing process in the body is usually painful, and that's what prolotherapy stimulates - healing. You can read more about it at prolotherapy.org. I truly hope your pain is minimal today and that you can maintain peace in your heart, despite your suffering. I'm totally with you, and just a message away!
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Support Groups
Close Reflex Sympathetic Dystrophy
I'm Caf and I'm currently in the midst of a case of chronic ridiculousness! I suffer from RSD in my right foot & ankle, which I developed after wearing high heels to the races 2 years ago. It's lead to other complications and a visit to the hip-operation monster. Throw in a jaw dislocated during cereal consumption recently and you just have to start to wonder about curses...I'm currently awaiting some blood test results before going in for a ketamine infusion
Treatments
Close Chronic Pain
Suffering from RSD since 2006
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