TINA'S TEAM
May 1, 2009 10:26am
This weekend, my team, called TINA'S TEAM, will be walking 5 miles at our local Walk MS event, put on by the National MS Society. Wish us …
Goal Completed on Mar 28, 09
TinaMS
11:22am, September 28, 2009
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About Me
TinaMS
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About Me
I've had MS for 7 plus years. I've been on several meds. Currently on LDN. It seems to be keeping me stable. I have a wonderful husband of 22 years and 2 beautiful daughters - ages 11 and 9. I also have wonderful friends and extended family, and a great support system.
I've had MS for 7 plus years. I've been on several meds. Currently on LDN. It seems to be keeping me stable. I have a wonderful husband of 22 years and 2 beautiful daughters - ages 11 and 9. I also have wonderful friends and extended family, and a great support system.
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Interests
Spending lots of time with my family. We love playing board games and games on the Wii. I also like spending time with our friends. I like taking pictures, a little gardening in the summer and doing Yoga.
Spending lots of time with my family. We love playing board games and games on the Wii. I also like spending
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Recent Activity
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Journal
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Hugbook
Hug
I'm back.Wanted to send you a hug.
Hug
When it hurts to look back,and your scared to look ahead,you can look beside you,and your best friend will be there,
Hug
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Celebration
Enjoying the walk aid. Tomorrow I'll take it out to the garden centers, I think. Can't wait till the new cuff is available though - since it will work even better then.
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I’m With You
Thanks Tina. I got the device today and wore it for about 6 hours. The book says check the skin every 2 hours for possibloe irritation - which I don't have so far. The only hitch was my custom cuff wasn't ready - the guy who makes them was on vacation so I have to wait. Meantime I use the standard cuff.
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Photos
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Goals
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSI've had MS for 6 years. I've been on several treatments, but recently Tysabri for almost a year. I just finished my 12th infusion last week. I'm currently taking LDN.
Treatments
- Baclofen Somewhat Helpful
- I take a half a pill 3 times a day. This seems to keep a steady dose in my system. Only side effect was initial tiredness.
- Betaseron Not Working
- I tolerated it OK, but it made my liver go bad.
- Copaxone Not Working
- I was on that for a couple years with no side effects except for injection site reactions - reddening, bumps, itchy. Kept me stable, but not any improvement.
- LDN - Low Dose Naltrexone Too Soon to Tell
- I started this 2 weeks ago. I have no side effects. I do notice some energy after I take it. I may be noticing some positive changes in bladder control, but still to early to tell. It's very affordable - $17.50 a month.
- Physical Therapy Somewhat Helpful
- I do some P.T. about once a year. It's helpful if I keep up on the exercises at home.
- Provigil Not Working
- Did not work for me and made me feel weird.
- Solumedrol Somewhat Helpful
- It gave me a ton of energy, but ate away at my bone density.
- Tysabri Working / Worked
- I've had 11 transfusions with NO side effects. My last brain MRI was stable. I have a C Spine MRI coming up next week. My walk hasn't gotten any better, but other than that, I'm fine.
Close Trigeminal Neuralgia
I've had MS for 6 plus years and TN just started a couple months ago. Never knew 'til now that TN can be caused by MS. This is the worst pain I've experienced having MS. I see my neuro in a couple days to plan a course of treatment.
