Journal Entry for June 19, 2009
June 19, 2009 10:04pm
Waiting to receive muscle biop and hopeful that test results will reveal and confirm the specific disease that is causing me neuromuscular …
Progress
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Neeva 
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About Me
Neeva
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About Me
In my early twenties, I had begun to experience weakness in both hands, which I thought was job-related. I continued to work and go to college until I was no longer able. Over the years, the hand weakness progressed with raynaud symptoms and no known medical cause. The muscle weakness continued to spread throughout my body affecting the hands, arms, legs, ankles, feet and respiratory system. However, on the brighter side of things, God continues to bless me immensely. And I am greatful for his love and the wisdom that he shares with me each knew day. Through my medical challenges, I have learned to lean on God and our relationship continues to grow. There is so much that I have learned about myself through life's trials. As a result, I have grown to be more empathetic, patient and caring toward others, instead of feeling bitter. My choice to stay close to God has provided me with an awesome sense of peace that I could never experience without him.
In my early twenties, I had begun to experience weakness in both hands, which I thought was job-related. I continued to work and go to college until I was no longer able. Over the years, the hand weakness progressed with raynaud symptoms and no known medical cause. The muscle weakness continued to spread throughout my body affecting the hands, arms, legs, ankles, feet and respiratory system. However, on the brighter side of things, God continues to bless me immensely. And I am greatful for his love
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Interests
When the mood hits me, I love to connect with others, share some interesting theories about life, laugh and have a good time. My hobbies include anything creative; painting landscapes, drawing portraits, all kinds of craftwork, photography(not professional), nature rides through the woods, star gazing, birdwatching, going to the opera, cultural dance festivals, visiting various tourist attractions, coffee cafe's, Contemporary Jazz/Bossa Nova lounges at night(smoke- free), environmental research and learning about different cultures from around the world And maybe one day I'll find a way to go sailing and travel a little before I am too old and gray... lol
When the mood hits me, I love to connect with others, share some interesting theories about life, laugh
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Journal
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Journal Entry for September 18, 2008
September 18, 2008 4:37pm
Well,
I received a series of non-invasive medical tests and waiting for results that will hopefully reveal a …
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Hugbook
Superhero Status
How are you doing? Hope your week is going good.
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Superhero Status
good to hear from you. It is nice to hear you are keeping besy. I have not gotien sceduled for the surgery yet still have to loss some weight. Hope you have some fun. josh
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Superhero Status
It has been awhile since I have sent you something. How are you doing. Hope you are keeping cool.
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Superhero Status
I did not see the star treck movie. if you see it let me know how it is. How are you doing? How was your forth of july? Mine was good.
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Superhero Status
Iam doing good. Trying to lose weight to get the baratric surgery. Good to hear from you. I hope you are doing good your self.
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Photos
Neeva hasn’t uploaded any photos yet
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Goals
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Support Groups
Close Raynaud's Disease
I am currently undergoing a series of tests that may reveal a diagnosis for Mixed Connective Tissue Disorder. I also have a positive marker for Lupus. While enduring various symptoms each day, the most intense include exhaustive fatigue, general malaise, muscle weakness in limbs with neuropathy,arthritis-like symptoms, brain fog, and raynaud's(intermittent nausea, dizziness)
Close Dercum's Disease
Hello everyone! I have an autoimmune disorder -causes muscle weakness/exhaustive fatigue, respiratory distress. Physicians suspect fibromyalgia, & atypical form of Lupus/MCTD etc. In 2006 a PCP and ENT discovered cysts on my internal organs and multiple sore lipomas all throughout my body. The pain from these subcutaneous nodules were mild unless pressure was applied - mild discomfort otherwise. Now the lipomas hurt all of the time, pain is more pronounced Diff. dealing w/new pain level.
Open Muscular Dystrophies
Type: Limb-girdle MDI have a slow-progressing neuromuscular disease that mimics the symptoms of LGMD.
