Journal Entry for November 16, 2008
November 16, 2008 2:51am
Things are bad again. I keep trying to tell myself that I can make it without going to the doctor or getting on any medicine but day by day I am …
roklimerchic 
3:50pm, January 25, 2009
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About Me
roklimerchic
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About Me
About a year ago I went to the doctor after a few too many scary trips to the toilet. I had a colonoscopy. I literally felt like I was dying. I am usually a healthy active 22 year old girl but after losing about 25 lbs from not being able to keep anything in my body I really wanted to give up. The colonoscpoy and biospies taken during the procedure showed what the doctors said was crohns. Since then I have gotten over the worst flare up yet. I have been taking meds which side effects I don't care for (asacol, prednisone, prilosec, and ambien). I thought I was finally starting to get back to my usual self. I then started slowly tapering off all meds, hoping to be able to handle the disease next time without so many prescription drugs. If you have had crazy side effects with these meds or have questions about them please ask me because I have researched them all during my many stages of unusual side effects. Anyway I was so happy to have found a support for my Crohn's as it was a huge struggle for me. This thanksgiving I had a huge shock! I went into the hospital for a 6 week stay to learn I actually had Ulcerative Colitis and they were wrong about my Crohns. In a life or death step to save my life they removed my colon (my husband and mother decided on this as I was too sick to know). I now live with an ileostomy bag. This surgery can be reversed eventually but the adjustment has been extremely painful and depressing for me. The surgeon who took the dieased colon out said that I wouldn't have been able to live with it in my body for even 2 more days because it had microscopic perferations and it would have gone septic in my body. The feelings and emotions which have gone along with this surgery and life change have been painful. I try to keep positive and I am thankful for any support.
About a year ago I went to the doctor after a few too many scary trips to the toilet. I had a colonoscopy. I literally felt like I was dying. I am usually a healthy active 22 year old girl but after losing about 25 lbs from not being able to keep anything in my body I really wanted to give up. The colonoscpoy and biospies taken during the procedure showed what the doctors said was crohns. Since then I have gotten over the worst flare up yet. I have been taking meds which side effects I don't care
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Interests
I like Plants, Helping people, my family, hiking, biking, cooking, ocean life, photography, scrapbooking, reading, Running yoga, pilates, painting my nails, shopping, garage sales, picture frames, swimming, poetry, art, being outside right now I am learning to play guitar and its awesome. Picnics, I love orange julius, music, decorating learning, painting, reading, rainy days, the library, cooking and talking on the phone with friends.
I like Plants, Helping people, my family, hiking, biking, cooking, ocean life, photography, scrapbooking,
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Journal
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New beginnings
September 16, 2008 4:53pm
So its my last week on the awful beast (prednisone). I feel scared, literally terrified. Last time I got off the prednisone everything came back full …
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This entry is private
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Hugbook
Hug
Hey Girl! How are you? I have been MIA because of the Crohns but I am feeling much better. Do you remember me? I was Heartsong but lost my password and coudnt reset it so I have a new account now. I look forward to hearing how you are doing!
Gold Star
heyyy! wowww my birthday's in april too and haha i wanted mine to be done right before so yeaa i could feel close to done! but because i have friends coming from germany on my birthday i decided to wait till after so that i could traipse around new york with them. and your right i have so much faith in my surgeon and hes a great comfort to me. and im so happy your doing better as well. its not all that bad. im wearing all my clothes in my closet again which is nice :D haha i only had one mishap the other day when i didnt put the clip on tight enough. luckily it was at home hahah so remember to snap it tight! haha its not a pleasant feeling lol i just have to start working out more now. ive been eating so much because i can w no problems and im gain it all right on my stomach haha. how are you doing?
Little Love
Happy Valentines Day!!!!
Get Well Soon!
Saw your mood was bad- sending good thoughts your way
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Rainbow
Hey! How are you doing? I hope your feeling better and haven't had any complications! I just went to my doc yesterday to talk about the second surgery and it made me a little bit nervous but he basically says it has the same risks as the first one and i have a feeling that all will be fine! im not having it until end of april sometime anyways. i really hope uve had an easier time with your ileostomy. im pretty happy cause now im starting to wear my tighter fitting clothes (jeans etc) w no problem haha! makes me feel like my life is more in my control. hopefully ur feeling similarly^o^
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Photos
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Support Groups
Close Crohn's Disease & Ulcerative Colitis
After many different events leading to this phase of my life I had a full abdominal colectomy and I have a temporary ileostomy. I am hoping to have this reversed in the near future in either one or two surgeries depending on what my body is capable of. For now I am just trying to heal emotionally, physically, and spiritually.
Treatments
- Asacol Not Working
- Took it! Saw no difference! Doctors say otherwise.
- Azulfidine Not Working
- Took it as a last resort before the removal of my colon. Had no effect whatsoever.
- Dietary Modification Working / Worked
- Drink Gatorade and avoid crap food!
- Prednisone Not Working
- I HATE THIS DRUG!!! It took my flare up away but at what cost (Too many side effects to list!!!!!)
- Surgery Working / Worked
- Complete Abdominal Colectomy (With a temporary ileostomy)
Close Anxiety
Treatments
- Breathwork Working / Worked
- Meditation Working / Worked
- Positive Thinking Working / Worked
