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About Me
kimiS
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About Me
26 year old work and fed up with crohns!!! love sports but this disease prevents me from excercising...
26 year old work and fed up with crohns!!! love sports but this disease prevents me from excercising...
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Hugbook
Hug
hi kim... i was on infliximab for three years and it was very good for me. I was taken off it coz i wasnt allowed on it for more than that :/ i have been on humira for nearly two years. it has reduced the inflammation.. But recently i am developing strange things, extreme fatigue, me=uscle wekaness, irratic mood changes, forgetting things (which has been frightengin).. im wondering is it from humira.. i have currently stopped it and waiting to see contucltant.. just be aware of side effects coz they are not nice
I’m With You
I'm feeling great! and I do hope and pray that everything will go good for you..prayersxx
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Hug
Oh yes you have to ween, I'm down to 20mg...I was on 60mg, I have been coming down slowly. how are you?
Hug
I don't know. The only new med was Predisone for 2 months which I stopped in may and now Lialda. My MD took me down on my conerta thinking I was getting to much. All that has done is make me restless during the day(ADHD so bad) andI still can't sleep. O'well @ some point it will be figured out. Last night I broke down though and started crying out of frustration more then anything.
Hug
TY! No i live in USA its just the type of insurance i have. It sucks seems like its getting worse. I guess i am going to fight him on this. Who knows maybe i am wrong and it is only a rlly bad case of ibs lol. If thats the case i want my colon taken out i cant live like i am going threw the worst labor you could have 1-3 times a month that last for hours!
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Support Groups
Close Crohn's Disease & Ulcerative Colitis
Treatments
- Azathioprine Working / Worked
- has worked until 2 years later I am getting pain and ulcers in my small . It did heal most of my fistula not all of it though
- Azulfidine Somewhat Helpful
- hated it made me so ill and tired.
- Flagyl Somewhat Helpful
- helped with infections
- Methotrexate Working / Worked
- not sure i have only been on a week
- Prednisone Working / Worked
- works but I hate it, so many side effects. Makes me depressed
- Probiotics Working / Worked
- VSL suppose to be great I am still driking it once a day
- Surgery Working / Worked
- total colectomy, ileostomy, ileostomy reversal, seton...
