My personal involvement with Lysosomal Disease as the Director of Family Services
My story begins quite some time ago, actually in 2001 when I learned that my son was diagnosed with Sandhoff Disease - a type of Lysosomal Storage …
My story begins quite some time ago, actually in 2001 when I learned that my son was diagnosed with Sandhoff Disease - a type of Lysosomal Storage …
We are the Hide & Seek Foundation for Lysosomal Disease. We are dedicated to raising awareness, medical education and research, family services, and media publicity.