Well it has been a few weeks since I have had the opportunity to sit down and write a new entry. Since Leslie has been home it has been very busy in coordinating as always the doctor appointments. It never ceases to amaze me that when a patient is sitill in pain after coming home from the hospital and we still do not have a clear diagnosis as to the cause, doctors that we contact for second opinions seem to think that the pain will magically go away by the time we see them. I guess it is the dream that they have for easy money.. oh well you no longer have the pain, I don't have to do any work.... you are all cured... pay the bill(a few hunderd dollars- to sit on the rears with their hand out)... and get out...next!
We have had all of the GI test with the exception of one which will be next week and it is looking more and more like some difficulty with the gallbladder. What angers me the most, is that because of the entense pain that Leslie goes through each and everytime she eats, she is not able to take in anything but extreme soft food and a great deal of liquids. She has lost 10-15 pounds already and cannot afford to loose any more. She is already down below 115 and at 5'7" that is not good. We are in costant prayer and know that God is providing the necessary strength to walk this path. Friday we celebrated our 21st wedding anniversry and I am extreme thankful and I am praying for another 30 years to be with my best friend.
We are both looking very much forward to November since that is when we are going to have our first MS Support Group meeting. The Lord has place on both of our hearts to take what we have gone through and what we have learned and share it with others. We are starting the support group with the affliation of the National MS Foundation to have a chapter in Middletown Delaware and then in December we will have the Dover chapter start it's first meeting.
We realize that it may take a year to really get the chapter established, but that's ok. We need to educate the patient and educate the caregiver. When a person is afflicted with the condition of MS, many individual sercome to the infamous camp of pity. I want to make sure that one in our local community here in Delaware realize that they may be temporarly down but
not permently out. Ok so it take's a little longer to do everything but in no way should that dictate that we are out for the count. We want to empower those with the condition to get all that life has to offer no exceptions.





