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About Me
Megan3737
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About Me
I am a Psychotherapist/Clinician III, who works in an Emergency department dealing with the crisis diagnostics, assessments and evaluations of people with psychiatric needs. I am also a college Professor. I was just diagnosed with IC a few months ago. I also have Fibromyalgia (with a history of Epstein-Barr virus and Mononucleosis), Chronic Fatigue Syndrome, Acid Reflux, IBS, Hypothyroidism, etc. This new diagnosis has really thrown me for a loop. It has changed my entire life. I am in so much pain all the time, and cannot deal with the stress of every-day life not to mention the stress of my current job. It makes me feel depressed because this is SO NOT who I am - I used to be SO ACTIVE. I am also so anxious about everything that is to come, in which the stress only exacerbates this condition. The pain has me out from work on an UNPAID medical leave (yeah, in the meantime of all this - NO INCOME); however, my Urologist won't sign the paperwork for Short-term disability because he has "never signed anyone out of work due to IC", (um...HELLO??? - I tried to explain to him that I didn't go to school for the last eleven years to NOT work, but I felt I needed some time to get this all worked out, and re-group, and find some treatment protocols that really work, but he wouldn't budge) so after I have the Hydrodistention surgical procedure on 10/22, I am going for a second opinion with a Uro that I found off of the ICA's website. I'm on Elmiron, Detral, Proced, Lyrica, (tried Atarax - didn't do too much so they took me off of it), Ativan for spasms, and have gone through the weekly DMSO installation treatments, etc., altered my diet, Kegel exercises, nothing has helped, and my Uro does not believe in pain meds either. So, right now, that is my life in a nutshell. Luckily, I have an amazing boyfriend and family, whom I love dearly, and they try to understand what I am going through in the best ways that they can. And, this supportive group of people online has really helped as well, so thank you.
I am a Psychotherapist/Clinician III, who works in an Emergency department dealing with the crisis diagnostics, assessments and evaluations of people with psychiatric needs. I am also a college Professor. I was just diagnosed with IC a few months ago. I also have Fibromyalgia (with a history of Epstein-Barr virus and Mononucleosis), Chronic Fatigue Syndrome, Acid Reflux, IBS, Hypothyroidism, etc. This new diagnosis has really thrown me for a loop. It has changed my entire life. I am in so much pain
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Interests
I don't do too much lately because of the pain, but generally, I like spending time with family and friends, photography, psychology, parapsychology, documentaries, reading, research, my five cats that make me laugh even on bad days, my favorite band - Korn, teaching (LOVE my students who have been so supportive and caring), Chris Rock; that's all I can think of for now.
I don't do too much lately because of the pain, but generally, I like spending time with family and friends,
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Hugbook
Present
Sending good wishes your way for a very happy New Year!!!
Get Well Soon!
Haven't heard from you in such a long time. I hope things are OK. Please don't take offense that I am removing you from my friends list. I have such little energy that I wanted a shorter more manageable list. If you get back to DS, look me up again. Wishing you great health.
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Hug
Good thoughts coming your way.
Hug
Sorry about your EBV levels. Hang in there. I know it's awful.
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IC sux! I have pain every day as well. Hope you find a uro who beleives in pain meds. I used to be very active as well and now spend 90% of my day in bed wrapped in cold packs and using my IF unit......I miss the old me. Good luck with everything - I wish you the best.
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Photos
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Support Groups
Open Chronic Fatigue Syndrome
I have CFS, Fibromyalgia (with a history of mono and Epstein-Barr Virus) and was recently diagnosed with Interstitial Cystitis.
Treatments
- Lexapro Somewhat Helpful
- Prescribed by my PCP for anxiety, etc. related to CFS...it seemed to work at first, but I am not so sure anymore.
- Pain Management Clinic Too Soon to Tell
- My doctor recently started me on Lyrica for the Fibromyalgia and maybe some bladder relief but I can't tell if it is helping yet. He also started me on Provigil for the CFS, saying it would give me more energy almost instantly, like as if I had drank 20 cups of coffee, but so far, nothing. I am still exhausted and seem to have some weird random headaches and occasional diarrhea from it.
- Reiki Working / Worked
- I am a Reiki practitioner myself, so I definitely believe in its abilities. It has helped as far as relieving some stress but I am still so tired.
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Groups
