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  • About Me

    Image of LivingLupus

    LivingLupus

    Female, 26
    Oklahoma City, OK, USA
    Member since March 24, 2007

    • About Me

      I was diagnosed with SLE a little over a year ago. It has been quite the journey so far and can only expect more hurdles. But I do have God on my side letting me know that I will only get stronger with the trials that are placed in front of me. I have an associates degree in Business administraion and a Massage Therapy certification. Yet after my lovely disease, I have decided that I want to change my degree and am going to school to be a nurse. So I will have 2 associate degrees but oh well.. I don't have anything else to do right now. No kids or husband. My dad would like to get rid of me - haha.. but he knows I am a DADDY'S GIRL.

      I was diagnosed with SLE a little over a year ago. It has been quite the journey so far and can only expect more hurdles. But I do have God on my side letting me know that I will only get stronger with the trials that are placed in front of me. I have an associates degree in Business administraion and a Massage Therapy certification. Yet after my lovely disease, I have decided that I want to change my degree and am going to school to be a nurse. So I will have 2 associate degrees but oh well.. I

    • Interests

      I like to cross stitch, crochet, scrapbook and play on the internet. I am learning to play the guitar - and yes I am getting callus' on my fingers. I love listening to Joyce Meyer and hanging out with my friends.

      I like to cross stitch, crochet, scrapbook and play on the internet. I am learning to play the guitar

  • Recent Activity

    Recently:

    • 3 journal posts, 2 hugs given, 1 hug received

    Today

    • LivingLupus wrote a journal entry: What a day... 1:22am

      So... I had to move out of Kyles back into my apartment. He has been so so rude lately and very grumpy…  

    Saturday

    Thursday

    • LivingLupus wrote a journal entry: Whew.... 6:36pm

      I came home yesterday (well to kyles). I have an electric hospital bed here, which is great! Yesterday…  

    November 17

    • LivingLupus wrote a journal entry: surgery 10:03pm

      I'm staying the night.. everything went well.. way druged up!! Talk to you tomorrow…  
  • Journal

    • What a day...

      Mood November 24, 2009 1:22am

      So... I had to move out of Kyles back into my apartment. He has been so so rude lately and very grumpy and when I call him out about it, he would …
    • Whew....

      Mood November 19, 2009 6:36pm

      I came home yesterday (well to kyles). I have an electric hospital bed here, which is great! Yesterday was hard. I was taking 2 of my pain pills …

    • surgery

      Mood November 17, 2009 10:03pm

      I'm staying the night.. everything went well.. way druged up!! Talk to you tomorrow
    • Hip Surgery Ingo

      Mood November 16, 2009 12:51pm

      I just got back from my doctors appointment. He said the surgery is "Zimmer Trabecular Metal Osteonecrosis Intervention Implant". Basically …
    • Hip Surgery

      Mood November 13, 2009 12:40pm

      I'm have hip surgery on tuesday, Nov. 17th!! Please keep me in your prayers!

       

      It's not a hip replacement, it's core decompression …

    Read Journal

  • Hugbook

    Give LivingLupus a hug



    • Hug

      From BeautifulDreamer Sunday

      I am always here for you and will be praying for a speedy recovery and no further need for anymore hip surgery!! Please keep in touch! How are you doing? Are you healing? Let me know when you can. Take care of yourself first! Love, Cheryl

    • I’m With You

      From imarriedapornaddict2 November 13

      Wishing you all the best. I WAS NOT trying to be negative AS I am your sister in Christ and had faith also; I just HAD to be honest.

    • Chocolate

      From keepingon October 28

      Trick or Treat! Here's acandy bar for you! Everything goes better with chocolate!
      Nan

    • Snowman

      From keepingon December 28, 2008

      Hey Mercedes, I'm sending you a Michigan snowman with my love! Nan

    • Hug

      From BeautifulDreamer September 11, 2008

      I really liked the quote in my journal comment from that book! It is so true that our circumstances are not what really matter. It is the Lord! Depression is a lethal emotion and neither one of us needs to play into it! We both love the Lord and are fighters and survivors and we need to squash the devil and tell him to leave us alone! By having friends here, we have accountability to them. I feel like if I am down and they are lifting me up, then by God I had better pull it together fast! I honestly do not know where I would be without this forum. It has saved my life! It gives me something to look forward to and I feel the kinship and empathy of people who know exactly what I am going through! It sounds like you are as lost as I am right now, but things will change for us! You will find that friend (real, not virtual) who will lift you up and be there for you. You are so young and have your life together already. You have been through more than most people your age! But you have persevered and are moving forward with your life! God will make sure that all the rest falls in line. Love, friendships, successes. By having faith in Him, you will be alright. He will help you through! Me too. I need to be reminded of the words you wrote from the book! Thank you for responding with that, and I hope you will feel better too! :) Cheryl

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Jul 14, 08 498 days ago.
    Current Weight (Lbs)
    174
  • Support Groups

    • Close Lupus

      I'm 23 years old and was 'diagnosed' with SLE in November. I've obviously had the desease for longer than that... I'm guessing my first symptoms came about 3 years ago. But right after I got diag. I had huge problems in my Kidneys. But with God's grace we are getting everything under control. I'm just now learning all the information about lupus and now lupus nephritis so if anyone wants to give me advice... PLEASE DO!

      Treatments

      Cellcept Working / Worked
      It seemed to work with all the other meds I was on but I can say that my kidneys are working now.
      Plaquenil Too Soon to Tell
      Started this just 3 months ago. Not even really sure what it is supposed to do. Been doing too much research on prednisone and cellcept... What is it supposed to do?
      Prednisone Working / Worked
      Um it saved my life, yet I'm so scared of it. Everyday is different. I could be on top of the world one min. and then pitty party the next.
      Prayer Working / Worked
      AMAZING... I guess you can consider me a 'Baby Christian' and I love it! Unfortunately I had to get Lupus to find God but at least he's walking right beside me NOW.
      Lasix Working / Worked
      Was on it for about 1 1/2 months along with a low sodium diet and LOTS of water intake I lost all my edema. Now just take as needed.
      Ramipril Too Soon to Tell
      Not really sure why I'm taking this. Just what the doc told me to do.
      Aspirin Working / Worked
      81mg per day.
      Potassium Working / Worked
      Had muscle spams so the doc had to increase the dosage at one point. No problems now though.
      Lipitor Working / Worked
      Doc wanted me on it?
      Hydrocodone Somewhat Helpful
      Can't really decide if it's the lortab or the prayers that are easing the pains...
      Zoloft Not Working
      I hated every min of it. I had the worst thoughts going through my head. I thought I was going to die at one point on a panic attact...
      Celexa Too Soon to Tell
      So far it's made me sleepy... I'm going to give it a couple more weeks to see what it really does
      Celebrate Recovery Working / Worked
      Love it!!
      Cymbalta Working / Worked
      so far so good
      Methotrexate Too Soon to Tell
      lets see!!
    • Close Raynaud's Disease

      My fingers always go numb... then I found out about Raynauds but was told there really isn't a treatment so I didn't think much of it... come to find out... it's systemic?? - not really sure what that means. But Diagnosis of SLE (Lupus) came with it!!

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