Journal Entry for July 29, 2009
July 29, 2009 11:55am
LallaUT
1:44pm, December 16, 2008
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About Me
LallaUT
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About Me
oh, I'll be right back to this, I got side tracked and didn't get anything written yet again.
oh, I'll be right back to this, I got side tracked and didn't get anything written yet again.
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Recent Activity
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Journal
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My TTP experience.
October 7, 2008 6:41am
I started getting confused in March -07, by June I had bruises everywhere, and on July 17th -07 I finally sought doctors help. By then my platelet …
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Thursday September 17th -08
September 18, 2008 8:42pm
Well, today has been a good day all around. I am still hurting, my foot and part of my right leg is STILL rather numb. So, ofcourse my back has …
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Hugbook
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Thank you for your support.It is definitely heartfelt!!!I so appreciate that.Lots of warm hugs.
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Hey Lena,i'm getting a little worried about you.I've sent you a message than a couple hug's,which I don't see here on your hug journal.So if you get a minute sometime soon could you drop me a quick message's to let me know your ok.I miss you,hug's Judy
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i can see why that didn't come across as funny...i'm out of sick days...so i'm calling in dead...never mind. bad joke. but thank you for the hug i truly appreciate it. :-)
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I hope that you find out what's going on. I'm beginning to think you have to forcerful with a doctor so he takes the time to get some answers, Mayo Clinic is wonderful and you don't need a referral, just take all records and tell doctors you want a second opinion. You need ANSWERS. Hope you have a better week.
Santa
Hej Lena! Hoppas du mår bra! Jag önskar dig en strålande jul. God jul och kram från Johan
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Close Thrombocytopenic Purpura
I started getting confused in March -07, by June I had bruises everywhere, and on July 17th -07 I finally sought doctors help. By then my platelet count was 7, LDS 1701, Crits 17, in renal failure... Well I could go on, but you get the point. After 1 week of apheresis, platelets were at 209, docs. decided to pause for one day, in less than 24 hours my platelets dropped to 96. That's when the prednisone was introduced. Continued in my diary.
Treatments
- Prednisone Working / Worked
- Gosh I hate Prednisone if it doesnt make you gain weight it masks infections and inflamations cause you to be angry and snappish for no reason what so ever and in general messes with your whole being. If it didnt safe lives it ought to be banned!
Close ADHD / ADD
After having had this my whole life, mom trying to find out what was "wrong" with me for years. I talked to a doc about how I felt, he asked a horde of questions, then put me on Adderall, which I have been on since. All the buzzing stopped, and I could read books again, talk normal, ACT normal. It's not quite at the right dosage yet, but I am investigating Omega 3's effect on this so I'm going to hold off on raising the dosage of the Adderall until I know what I want to do with the Omega 3.
Treatments
- Adderall Working / Worked
- It's definitely working for me even though the dosage needs to be corrected since it's not helping enough. Since I'm currently struggling with other health issues that requires medication that might or might not cause some of my symptoms, the doctor and I agreed that we won't adjust the dosage until I am so healthy that I can stop those meds. Then we'll watch and see how I am and perhaps then it will prove that the dose is enough after all.
- Research Working / Worked
- I've learned soo much, with both my kids also diagnosed with ADD, I HAD to learn. Now my son is off the medicin, he seems to have grown out of it, but sometimes seems to relaps. Daughter on meds still but reading up and testing Omega 3 on her right now, it's not quite as quick as I would have liked though. Somewhere I read it takes 3 months before you see anything from the Omega 3.
Open Back Pain
I injured my back at work in -97, messed up 3 discs and 4 vertebraes. The discs are bulging in rather than out since I never bent when it happened. I've struggled through operations and mind numbing pain. The latest crazyness is that my numbness that normally comes and goes, had decided to stay so my right foot is not very reliable at the moment.
Treatments
- Bedrest Working / Worked
- Due to "how" I injured my back, bedrest has been a method of relieving the pain that I've been able to "administer" myself. When all else fails, bedrest works.
- Chiropractic Adjustment Working / Worked
- As my very wise Chiropractor said back in -98, there is only SO much he can do, then the rest was up to me. So yes, it worked up to a point after that, I had to use other means.
- Epidural Injection Working / Worked
- These have been the one singulary, most helpful thing for me, I could almost go oral pain medication free, when these shots worked. They reduced the swelling that pinched the nerves so, simply, they solved MY problems, unfortunately they wear off, I wish there was a permanent solution that worked the same way.
- Fentanyl Working / Worked
- Tried this at 25mcg, which I didn't even notice, after "humoring" my doctor for 3 months I finally said that we were wasting money. Then when I became sensitive to my other pain medication, this was reintroduced at 75mcg, and boy did I finally understand what Fentanyl could do. It takes down my pain, if it's at a 7, to a 5. It never removes all the pain, but it is a good "support" pain reliever.
- Flexeril Not Working
- Did not work at all for me, but then my pain is nerve pain and not muscle pain. What muscle pain I have I treat with ice.
- Morphine Somewhat Helpful
- This helps somewhat, at 30mg I refuse to go stronger, but we are trying to figure out something else, while waiting for my epidurals to be "OKAY'ed" again.
- Naproxen Working / Worked
- Worked like a charm for the first 4 years, then the doctors discovered that Naproxen just about removed my stomach lining, one spot at the time. I now can not take that anymore.
- Physical Therapy Somewhat Helpful
- Of course, strengthening my muscles will always help, except for when my nerve pain gets too severe and too much motion causes greater pain.
- Stretching Working / Worked
- This works great for the back spasms.
- TENS Working / Worked
- Yes have one, it works on stopping the back spasms, but they are so secondary to the nerve pain I seem to scramble to treat the nerve pain anymore. The spasms can't hold a candle to the nerve pain.
