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  • About Me

    Image of sarahray06

    sarahray06

    Female, 21
    sebring, FL, USA
    Member since August 25, 2008

    • About Me

      I am a stay at home mom and wife with a 12 month old little boy

      I am a stay at home mom and wife with a 12 month old little boy

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      From gavinrmom February 19

      We went to the summit last year in colorado, the company that sponsors it is the CBCE, actualy this may just be for Hemophilia a and b with inhibitors, but check out their website it may help. Good luck-Michelle

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  • Support Groups

    • Close Zellweger Syndrome

      My son has been diagnosed with a peroxisome disorder ...allthough he doesnt "fit " into any particular group ..the Doctor says its very similar to zellweger.I am just trying to research as much as possible ...

    • Close Hemophilia
      : Factor IX (Christmas) Hemophilia

      I am looking to help a friend who has hemophilia B. My son has a genetic disorder however not hemophilia B.

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