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Give fiddle a Hug

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  Vicsta (11/08/09)

  Hi Fiddle
  
  I read your message on my journal. Thanks for commenting. Unfortunately, I have not had any tests at all... for TN or for Acrogmegaly (which is a pituitary tumour). I was diagnosed by my GP for TN after years of facial pain and just put on Tegretol. They pretty much said same to me as was said to you: if meds don't work and it gets worse, we will send you to a specialist. It's crap isn't it!
  
  So the waiting I am talking about is for the pituitary problem (which could actually be causing the TN) as my body is growing and in a lot of pain and I need to see an endocrinologist. I have gone 2 months now since I was told I need an appointment... am still just waiting.
  
  Have you tried going back to your doctor to ask for an MRI scan?
  
  
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  hollidayddd (11/08/09)

  Hi Fionna, I read your note and thank you for your support. But I just had to say that pain is pain and I am sure yours is just as real for you as mine is. And when yours knocks you out for a day then you are knocked out! I have those days and I just have my kids watch tv but unfortunately they are getting so fat and I have to really step up game and get them outside to run. But I don't have that kind of energy and my hubby is a work-a-holic (doesn't bring any money though) but he just draws and paints and doesn't sell anything. I I am going to start a low caarb diet with my girls starting this week because I know that we are just carb intolerant and it is just making us balloon up like crazy. Even my 4 year old is getting huge and she has fat little fingers. We don' t have a yard for them to play in and that has been a problem. Ah, I just sat back and thought that we should have thought more about that when we bought this house. But oh well, I well just have to do the best I can. Great, pain & guilt!! I have to work it out , LOL oh dear. Maybe I could hire a teenager in the neighborhood to come and exercise them? They are expensive nowadays but I could see? Hmmm. Well, you have a great day and thank you for being a great friend (and a good sounding board as they say)! Take care, XOXOX -Holliday
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  SahKonteic (08/16/09)

  Thank you for all your support and prayers while I recover from the detached retina. I am not online as much as I was, have a lot of healing to do yet - but thank you so much! Hugs. S.
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  hollidayddd (08/02/09)

  I stopped the neurontin because I was so sick and I am just taking a break from nerve pills - I am feeling better and I think it is because of more time in the sun. There is a link between vit D and pain relief. Talk to Jady ;o) Or google it. I am just on the opiates now and I am not half bad. I had a talk with hubby and told him about divorce today - I told him that if he can not control himself and his attitude then how is he going to teach these things to our girls? We went to church today and it was the topic of the pastor! Coincidence? So a couple we know prayed over the two of us and maybe it may sync in. But I really appreciate your comments. My husband means well and he isn't 100% bad (maybe 85% - he he) but my girls do love him to bits and I do to. I would be better off living with him if we had separate houses that were attached with a family room or a kitchen to meet for meals. During the day we hang out in separate art studios so we are somewhat there but he tends to smother me! I have always been a loner but I just feel like a single mom when it comes to the kids and when we are sick it is SO HARD to handle the girls. But he has to get control of his desire to fight with me in front of me in front of the girls (and make me look bad). That is parent modeling that perhaps losing control for 1/2 of the month isn't looking bad. And I told him this, I am very vocal. I am getting the girls ready to paint and then they are eating lunch and then off to the pool. I am making the cutest little hair flower barettes for their hair and I may sell some - I am making them while they swim so I am keeping myself busy while they get exercise. Take care Miss fiddle, have I ever asked if you play the fiddle? love, Holliday
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  hollidayddd (07/18/09)

  I commented on SahKonteic's journal but you won't get notified so I thought I would send you part of the conversation. Weather; Well, I guess San Diego is getting a little unusual weather (humid) and I keep dragging my bones to the pool for my girls. I stay in the shade because it is so HOT but the pool is nice. I have started making necklaces while they swim. I have only made one so far but it is relaxing. My girls will stay all day 4 - 7 hours so lots of sun screen, snacks and good exercise. I am glad you are getting some relief from the weather. When I say hot in SD I mean 85 ;o) We are climate wimps! But for every 5 miles you drive away from the coast, the temp goes up 5 degrees. It is 115 in the desert! I am luckily on the coast. My girls are screaming to go to the pool, have a great day / evening! -Holliday
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  Ray of Sunshine
  

  Vicsta (07/11/09)

  Hi Fiddle. How are you? I am doing ok... managing to keep the TN under control most of the time, which is much better than I was last year. x
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  Flowers
  

  SahKonteic (07/09/09)

  This comes with a wish that your work in the charity shop leads to a job that you LOVE!
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  Hug
  

  hollidayddd (06/05/09)

  Hi Fiona, much better today & the anesthesologists doc went great yesterday. He gave me a better pain medicine set up than my neurologist. In america there are problems w/ drug inforcement laws too so I had to go to a special doc to get the strong medicine and I had to take a drug test to make sure I didn't have any hard drugs in my system! He didn't care about marijuana because he did see that as a valid pain management tool and I told him that I have smoked it for the shocks and it does work (it just hurts to smoke & I don't want it around my girls). So things are looking better today! I don't have the new presription yet in my hands & I will get that today but he gave me MScontin which is morphine & tylenol so I hope it works! But I will explain that all of my migraines I have figured out are food related and they are reactions to the seasonings put in foods like MSG or the salt flavorings. I have pretty much elliminated all of my migranes and I used to have them all of the time before I figured them out. SO that is great news to go from 3 -4 a week to 1 every few months. I checked out the trigeminal neuralgia group on FB and there are hundreds of people! I have really become close to a few people here. I am worried about "butterball" I haven't heard from her in a while and I hope she is okay. Well, thank you so much for your concerns, things are getting much better! take care, -Holliday
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  kpetrescu (05/31/09)

  Thanks for the words of support! I really appreciate it. I'm so glad I joined this group. I can already tell that it is filled with wonderful and caring people who really understand what I am going through! Thanks again and I hope you are well!
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  hollidayddd (05/31/09)

  Hi Fiona, Thank you for your input. It is much different in america & stupid I may add! I will get an insurance card number in the morning so I am going to hold out until then. I have so much swelling in my face & neck which has me worried but I am noticing in other posts that a lot of other people get swelling too. But my neck has me worried because that is new. I also have the neurologists appt. on wednesday. I always seem to get really bad right before I see him - Argh! But in america there are so many people that don't have insurance and they are in the company illegally that the residents have to pay for them so we have to end up paying 12 dollars for a bandaid. The ER is the worst place to go without insurance. I guess I get so used to being in pain that I can hang with it, at least until tomorrow when our insurance kicks in. My husband just called me an invalid though. That didn't make me too happy. No I can't clean but he doesn't need to be tossing out names , sheesh! Thank you for your thoughts and prayers! -Holliday

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