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  • About Me

    Image of Newly

    Newly

    Female, 65
    Rock Falls, IL, USA
    Member since August 25, 2008

    • About Me

      retired, wife of cll & small cell non-hodgkins lymphoma patient - anxiety over recent developements and meaning of what is going on

      retired, wife of cll & small cell non-hodgkins lymphoma patient - anxiety over recent developements and meaning of what is going on

  • Recent Activity

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  • Journal

    • Jim is so sore all the time now---

      Mood September 13, 2008 10:29pm

         I see him getting more and more tired all the time , like he is slipping away from me day by day.   Is this just the beginning …
    • Hurray !!!

      Mood September 5, 2008 1:06am

      Good news day ---- Jim has acheived remission already after only 1 treatment series.  He just finished his second series today.  It was a …

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  • Hugbook

    Give Newly a hug



    • Flower

      From renalwife September 26, 2008

      Thanks for the hug. I just got back from having my blood drawn for my monthly labs. Also got the car washed. Made some nice blueberry pancakes and bacon for breakfast. Hope you have a smashin' day. (that is UK for a lovely day)

    • I’m With You

      From deby September 20, 2008

      how are you doing? deb

    • Hug

      From REM8CLL September 9, 2008

      Thank You.....

    • I’m With You

      From emmazito September 5, 2008

    • I’m With You

      From emmazito August 28, 2008

    Read Hugbook

  • Support Groups

    • Close Chronic Lymphocytic Leukemia (CLL)

      My husband was diagnosed with Cll in 2000. We have been "waiting and watching" for 8 years. In July his wbc count reached 112,000. A biopsy of a neck node was done and small cell non-hodgkins lymphoma was found. He is at stage 4 and started chemo last month. After his first round of chemo his wbc count dropped amazingly to 5,000, however his absolute neophils dropped to 0.2. I have so many questions and fears about how long he will be with me. The fear of the unknown is hard to deal with.

      Treatments

      Chemotherapy Somewhat Helpful
      no side effects yet . He is on rituxan, fludara, and cytoxan. He does have unexplained swelling and pain in his wrists and arms ( severe pain) But this started before the chemo
  • Friends


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