SDee

Close Myasthenia Gravis

1st symptom was difficulty swallowing, then right eyelid drooped. Started Mestinon which worked really well for almost 4-1/2 yrs until m/g moved on to my arms and hands. It's pretty generalized now. Was diagnosed in Jan. of 2003 but doctor thinks I had M/G for some time before then but symtoms were so mild, I didn't notice at first. Taking a lot of meds but feel I do fairly well overall. I'm retired and have a moderately active lifestyle.

Treatments

IVIG Working / Worked

Started in January of this year, and it works very well for me. I have a series of l per day for 5 days and feel better almost immediately and its effects last for a little over 6 weeks then I start another series of 5. No side effects I can determine.

Mestinon Working / Worked

Rely on Mestinon. Started taking 4 (60mg tablets) per day when first diagnosed. I'm now up to 6 per day. No side effects I can determine but I sure notice if I miss a dose.

Cellcept Working / Worked

I ran into some trouble breathing earlier this year after a cold and it triggered a strong MG reaction. So much so I was put on 4 500mg tablets Cellcept per day. No side effects but doctor would like to cut back the dosage a little anyway.