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DiRN
Female, 54, Maumee, Ohio, OH
"Kylie is a year old!"
2:04pm Friday
Changes in the wind Mood
Monday, August 24, 2009 | A General Update story

Life is pretty good. Kylie went to the neurologist last week and they are starting to wean her off the Phenobarbital, the antiseizure drug they had to use after her stroke. The kids saw her brain scan from February and were amazed. The stroke literally took out 15 to 20% of her brain. Yet to a casual observer, there is no sign that she ever had a stroke. There are no visual problems, her right side has caught up with her left, don't know about learning disabilities yet but...She's truly a miraculous little lady. I can see a little loss of control in her right eye when she's tired but that's it.

Missy and Christian are doing great. Christian is a little cranky and still is fighting it out with oral aversion. Pray on that because I really would like to see him get the hang of eating.

Brittny is having her appendix out today...She had the heart transplant in December. Everything is a big deal post transplant, so pray for her.

Jess is somewhat better, has lots of projects in the works to raised awareness of CHD and support the heart program at U of M. She has thrown heart and soul into this cause, so keep her in your prayers.

Paul is gearing up for his gall bladder surgery. I keep forgetting that it's scary for other people to have surgery. I had mine out six years ago and compared to what they've done with Kylie, it's no big deal. It wasn't a big deal for me, but I am pretty well desensitized. Please pray for him and me too.

Keep me in your prayers too. Christian's case is winding down, maybe a month or two more of nursing care and he won't need us any more. It has been on my heart to leave nursing for a while. Most of my family and friends are thunderstruck. "You, leave nursing, but your so good at it and you've been a nurse for so long" yada, yada, yada. The thing of it is, I don't know what I would do if I left nursing. So I'm kinda seeing what doors open to me. I hope it isn't the door to Walmart...I've always joked that when I got too old to be a nurse, I was going to be a greeter at Walmart. That would be a sign that yes, I really am old! :) I don't have a walker yet so how would I stop the shoplifters... I couldn't go "Slow down punk, so I can beat you with my walker!" :D What's sad is most people have no problem imagining me doing something like that! lol

But Christian's case would be a nice ending to a long career. Everything is going so much better. Missy has really got her life on line, keeps saying "I never realized how miserable I was and how bad my relationship with O really was!" Christian is doing great physically. But... Time will tell.

You can really start to feel Fall coming here. Changes in the weather, flocks of birds. I saw 200-300 Canadian geese gleaning a recently harvested wheat field. I've always loved the fall, my favorite season and for me it is a season of new beginnings. I know, for most people it is New Years Day or spring. I've always done things a little bit differently... Love and Blessings, Diane

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Comments

  1. 79pounds

    it feels like fall here too. we go through it every august which amazes me because down south you don't go through it at all. its summer there until october or november. but here, one day its hot and then its brisk at night, a lot of people love that but not me. i prefer balmy.

    perhaps you can work i social work or for an insurance company...there are jobs that need a nursing degree but you aren't really doing the hands on nursing. or how about teaching at an lpn program? i think you need a bsn for that and they have a hard time getting teachers as they probably all prefer teaching rn level. also home health administrative has nurses in charge as well. lots of ways to go for you. nurses are always needed.

    kylie truly is amazing and so are the other kids. i hope they all remain healthy and my prayers are with all of you. i think you are tired diane, i don't know how you do all you do. even when rescue animals die i get depressed for about two weeks after that happens. i don't handle stuff like that well. after the initial emergency which i am generally okay with, i get very out of it and if its too much of it i either get very strong from it all and my skills get really good or i get very onfused andout of it which is probably from being exhausted and lack of sleep.

    take care of yourself! xxoo


    79pounds

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