I feel so much better. I have not been sleeping well for a couple of weeks, just all the stress and all. Sooner or later even my system will run out of adrenaline so... I have a couple 8 hour stretches of sleep plus a couple naps and I feel like a human being again.
They are doing a lot of tests on Kylie, hopefully in anticipation of discharge in a few days. Yes!!! Home by Mom's day? Maybe....That would be a good thing.
Ethin is still just having more problems. Now he has an infection from a couple of different organisms. He has an infection in his respiratory tract plus diarrhea... which could be due to the antibiotics or another bug. Still on the vent, losing weight which is the last thing he needs. This has been a really rough time for him so hold Ethin and Jess in your prayers
Orlando's pretrial hearing is today. Please pray for Missy and Christian that this thing just works out for the best. I don't know what the best is... but God does. If Orlando could grow up and be a good dad and husband...then the best thing would be for this all to be a bad memory this time next week. If he can't...I just get the feeling that he has gotten away with too much crap already and it is now time for him to man up and face the consequences of his actions. I just don't know
Uploaded the great picture of Mei Ni. Man, she looks like a different girl...Wow, I have been witness to so many miracles throughout this whole Kylie thing. It gives me chills and takes my breath away.
I'm going to take a big plunge...I am uploading Ron's care page and my ds journals onto the laptop in preparation for starting work on "Wonderfully Made" which is Kylie's story. Everybody keeps telling us we should write a book...Well here goes. Ron does not know about this yet...I have a feeling that this might be one of those rare occassions where it will be better to beg forgiveness after than be refused permission. If it gets published it will be a miracle and if I can shoot R and A some money... Well that would be a good thing wouldn't it. There is a new "Chicken Soup" book coming out on miracles...I just don't know. I'm scared but I'm a Stowers, when does being scared stop us? :)
Love and Blessings
Diane






it could also be a screenplay or a documentary on all the miracle babies you have witnessed. you don't need permission to write a book, especially if you do the "names have been changed" to protect all involved thing. best of luck to you. writing a book/screenplay is a major feat but i think you can do it. you are a good writer. your journals are very clear and length doesn't bother you. length is usually the part that immobilizes people.
if you make the story very broad you may want to look into adults who had what kylie has and lived productive lives as adults etc.,
79pounds