Something approaching...Normalcy!
October 29, 2009 12:13pm
Once again, I haven't fallen off the face of the earth! Just working 6 to 7 nights a week. But I got good news... either tonight or tomorrow I …
Progress
10 %
DiRN
11:35am, October 16, 2009
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About Me
DiRN
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About Me
My life continues to change and I continue to try and keep up with all the new things going on! I work a lot with "medically fragile" kids, both as a nurse and as a Christian now. Kylie, my granddaughter, is still surprising us and keeping our lives extremely interesting. It looks like we may be winning this oral aversion battle with Kylie and Christian. Oral aversion is pretty common in babies that have had a lot of medical procedures, have been on vents, have GERD (premies, heart kids, etc.) They just come to associate having something in their mouths with pain so they just won't eat orally. Man, my world has changed in the past year.I have changed so much in the past year. I knew that miracles happened occassionally, I've seen a few in my career in nursing. Now my life is filled with miracle babies, Kylie, Christian, Mei Ni. At this point I feel that God wants me to continue to follow this path, caring for and witnessing about the babies and children that he is bringing into my life. I will continue to do so and offer up my experiences so that maybe they will be of use to others. I feel that these flawed in the world's eyes children truly are the best that God makes. If you have the courage to follow them, you will experience things and grow in ways that you cannot imagine. Kylie continues to amaze us all with her courage, persistence and survival. God continues to amaze me with his incredible grace and miracles. Wow, it has been a wild but wonderful ride and I am now seeing where this little girl, her parents and her heavenly Father are going to take me. Though I get down and frustrated at times, I just am amazed at the joy and hope in my life. There is also great sorrow at times too. If you want the Kylie report check my journal or go to www.carepages.com, Keyword Stowers, Kylie. I have received incredible love and support on ds and appreciate all the prayers more than I can say. Love and Blessings, Diane
My life continues to change and I continue to try and keep up with all the new things going on! I work a lot with "medically fragile" kids, both as a nurse and as a Christian now. Kylie, my granddaughter, is still surprising us and keeping our lives extremely interesting. It looks like we may be winning this oral aversion battle with Kylie and Christian. Oral aversion is pretty common in babies that have had a lot of medical procedures, have been on vents, have GERD (premies, heart kids, etc.) They
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Interests
I am interested in everything, except sports on tv. Well I like horseracing and X games, so that's wrong. I really like being outdoors, hiking, horses and riding, animals of all kinds, crafts, writing (Oooh I really like writing), food, spending time with my friends, science and geeky stuff... Wait a minute, I guess I'll go back to interested in everything. I like my job (?) finally. I don't like opera, hate rollercoasters (I live near Cedar Point), otherwise, I'm up for it
I am interested in everything, except sports on tv. Well I like horseracing and X games, so that's wrong.
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Recent Activity
Recently:
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2 hugs received
Yesterday
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DiRN gave thegardener a funny face 9:58am
I'm sending you this funny face, hoping to make you smile. Life is pretty good up here, and here is the…
October 29
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DiRN wrote a journal entry: Something approaching...Normalcy! 12:13pm
Once again, I haven't fallen off the face of the earth! Just working 6 to 7 nights a week. But I…
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DiRN gave susanjoy a hug 11:26am
Kylie is wonderful! I am good. I still think of you at least once daily and you and your family continue…
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DiRN gave xXforeverOaOchildXx a hug 11:24am
Just checking in, it sounds like clinicals are going well. When do you graduate in November. I haven't…
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DiRN commented on Skymom’s journal entry Journal Entry for October 14, 2009 11:20am
I'm the grandmother of a HLHS baby. Isn't it wonderful when you have a good doctor's visit! Love and…
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Journal
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Hi All!
October 16, 2009 11:34am
No, I did not fall off the face of the earth! I have been pretty busy lately and am getting ready to do some running, so hear is the short …
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OUCH!!!
September 29, 2009 12:01pm
I guess the best way to describe the past week or so is it was ouchy. so...
C. got home from the hospital. He was still pretty sick and lots of …
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Bye for now
September 19, 2009 12:00pm
well, I've been on a lot this week and I have been glad to catch up on some of you guys. It's good to do this, but...It ain't good for my …
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Good news!
September 17, 2009 12:24pm
Aubrey and I have been not arguing, but discussing the feeding tube issue all summer. She really wants Kylie to have a G-tube surgically placed and …
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Hugbook
Little Love
where have you been? hope you are okay and all is well. xxoo
Funny Face
Hugssssssssssssssssssssssssssssssssssssssssssssssssssssssssssss
and Lovessssssssssssssssssssssssssssssssssssssssssssssssssssssssssss
and Prayersssssssssssssssssssssssssssssssssssssssssssssssssssssssssss-
Moment of Peace
hi i am sending you today a moments peace, hope all is still going ok, and that you arn't over doing it,thinking of you all,is it ok to send kylie's card to the address on c pages,as i don't know where to send it, i will shortly be sending it, so let me know if this is not ok, love and hugs, bye for now.
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Rainbow
I see you are very much involved with children: I just finished a book about a woman who murdered 9 of her children. The book was written well, it gained momentum and touched my heart, a nice heartache for me this time, lol. Hope you are doing ok today, sounds like you could use a nice day of rest right about now!
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Ray of Sunshine
just catching up on your journals. didn't realize you are back. and still soooo busy. good luck with the moving. how are YOU? xxoo
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Photos
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Goals
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Support Groups
Close Congenital Heart Disease
Type: Hypoplastic Left Heart SyndromeWe found out that my first grandchild has a severe congenital heart defect. I have been learning about HLHS for my own sake and so I know info for my family. Kylie will be born at Christmas, so it is good that we have time to prepare.
Close Irritable Bowel Syndrome (IBS)
I have had IBS for about 20 years. I don't have it very bad. I try not to do a whole lot of meds, though I do take Immodium about 3-4 days out of the week. I try to increase fiber and decrease caffeine too.
Treatments
- Chamomile Working / Worked
- I use Chamomile Tea for everything from a broken heart, to IBS, To sleeplessness. I like Celestial Seasonings Sleepytime. It may only be psychological (placebo effect) but just the smell of it makes me feel better
- Colace Working / Worked
- Imodium Working / Worked
- Works pretty well for me
Open Depression
I have suffered from depression for a long time. I'm pretty well controled if I keep my life balanced and stay on meds
Treatments
- Celexa Working / Worked
- Works better for me than any of the other SSRI's.
- Meditation Working / Worked
- I use a mixture of Meditation, Prayer, relaxation techniques, and eye movement desensitization and reprograming. It has really helped that panic attacks
- Positive Thinking Working / Worked
- Sometimes changing your attitude is the only way to cope. There are a lot of things we cannot control or change. I try to read, watch up beat stuff, and be an upbeat person
- Psychotherapy Working / Worked
- Take time to find a couselor that clicks with you. It took a couple of tries but I found a wonderful counselor who really helped me.
- Support from Friends & Family Working / Worked
- My family may not always understands but we try to be there for each other
- Writing Working / Worked
- Writing, journaling and blogging helps a lot
Open Dyslexia
I am here to post some news that is important to the group
Open ADHD / ADD
I am here to announce the news of a member's death
Open Financial Challenges
Right now we are having financial problems, and living in an economically depressed area. Plus our granddaughter will be born soon with some major medical problems, so we are trying to make our money stretch farther.
Treatments
- Budgeting Working / Worked
- You learn to live withing your means, however sometimes the means are bigger than you are
- Cut Up Credit Cards Working / Worked
- Best thing to do, makes it rough if you have unexpected expenses
- Earn Money Working / Worked
- Yes, that works but my skills may be needed at home. I am a major wage earner in the family
- Filing for Bankruptcy Considering
- may be our only hope
Open Mitochondrial Diseases
DiRN hasn’t entered any details for this support group.Open Smoking Addiction & Recovery
I know I can quit, I've done it so many times. It is staying quit that is hard. If I could hide in a cave for 60 days there'd be no problem :) Living my regularly scheduled life makes me want to smoke!
Treatments
- Cold Turkey Somewhat Helpful
- I'm too much of an addict to do it totally cold turkey, but... I am trying. I think that it is the fear of the withdrawal that is worse than the actual withdrawal itself
- Hard Candy Somewhat Helpful
- Nicotine Patch Working / Worked
- I use this as a support. It does make me have wierd dreams
- Wellbutrin Not Working
- Makes me bitchy and gives me migraines
- Willpower Working / Worked
- Definitely helpful
Open Organ Transplants
I am a grandma. My granddaughter Kylie has Complex HLHS, so I have spent a lot of time in a PICU that does a whole lot of transplants of all kinds. I also have some experience as a nurse caring for transplant patients
Open Kids With Cancer
My son is 4 years cancer free after chemo for a rare form of testicular cancer called seminoma
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