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About Me
Heti
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Interests
Gardening, reading, people. We're currently trying to get the local community a bit more involved with each other - you know, like do you know your neighbour!? We've had lots of fun things going on and it seems to be working - next we hope to get the local pub sorted and the last sail on the windmill at the top of the road - it has been a few years in the waiting! I do sewing, crocheting and making generally. Love my dog and hubby.
Gardening, reading, people. We're currently trying to get the local community a bit more involved with
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Recent Activity
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Journal
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everything's on the up
i've started an exercise program under the supervision of my physio - she comes in twice a week to check how i'm doing - and i'm …
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a journey
It's been a while since i last wrote, and i have been thinking of you all so much, but i became so ill they whisked me into hospital …
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Hugbook
Ray of Sunshine
Hi, Heti. How's your community work going? Hope you're well and feeling strong.
Cheers
Just call me a headless chicken! I have a pile of Christmas cards that I'm trying to finish, I e-mailed gift certificates to a few relatives just last night (and still have a couple more to do today), I have an order to pick up this afternoon before I start cooking Christmas Eve dinner, and once dinner's in the oven, I plan to wrap a few presents. Whew! But I'll slow down long enough to thank you for your friendship and wish you a wonderful holiday and a happy and HEALTHIER New Year. All the best--Debra
Celebration
Hi Hetty, Thank you so much for your info and support it means a lot. I have been to see the doc at the hospital today and had xray yesterday.Im glad to say the pnuemonia has gone.But no more chemo for now they want to do more test on my lungs and blood!! Have to go on the 19th Jan for xray and blood and then the 22nd Jan to see my doc Dr.Rosas.I must say i think without him i woulnt be here now so i owe him big time.But he´ll have to do with my thanks and the bottle of Rioja red wine i gave him today. We are all ready for xmas and are on count down.Dont know if i told you there are 9 of us on xmas day and we are all providing something toward the meal.We are doing the veg. and trifles.Should be a good gathering.I hope you are feeling a bit better and please ask any question you like and ill try to answer.Keep in touch and have a super christmas and new year. Love and hugs Gillian
Present
Sending much love back to you!!! Happy Holidays Heti:)
Hug
Heti when you had pneumonia in January how long did it take for you to feel better.I have been taking antibiotics but dont realy feel any better yet?? Hope you are feeling good.regards Gillian
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Photos
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Goals
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Support Groups
Close Polymyositis & Dermatomyositis
i'm married to a lovely guy who has been nothing but the best thing ever. i was an infant teacher until illness took away the job i love. i live in england, in the countryside and love it here. a dream come true would be being able to walk my dog through the woods and i hold out hope this will happen by easter; and that's when i hope to be well enough to get back to work. it's been a long 3 years but the support from family and friends has been amazing. to keep busy i make crafty items.
Treatments
- Azathioprine Working / Worked
- horrible drug vomiting and nausea. losing weight. but getting better so worth the hassle. No longer on it, worked after 5 weeks.
- Physical Exercise Working / Worked
- Hard at first but worth the pain, worked brilliantly.









