-
About Me
Sarah100
-
About Me
Mother to a 15 yr old daughter who was diagnosed with MG in 2008.
Mother to a 15 yr old daughter who was diagnosed with MG in 2008.
-
Interests
Rescue dogs, support and education for parents of special needs children, adoption, reading, swimming,
Rescue dogs, support and education for parents of special needs children, adoption, reading, swimming,
-
-
Recent Activity
November 4
-
Sarah100 and mommy4sofia are now friends 9:19am
October 30
October 28
-
Sarah100 wrote a discussion post in the Glaucoma support group: antibody testing for NTG 12:42pm
Has anyone had any antibody testing for glaucoma (either kind)? My 15 yr old daughter recently was diagnosed…
October 27
May 1
-
Sarah100 turned 46 12:00am
-
-
Journal
Sarah100 hasn’t written any journal entries yet. -
Photos
Sarah100 hasn’t uploaded any photos yet
-
Advertisement -
Support Groups
Close Myasthenia Gravis
My 14 yr old daughter was diagnosed 6 mos. ago. She was a power volleyball player and was having trouble setting the ball. When she started slurring her speech in the evenings we saw a neurologist and she was diagnosed with acute, generalized MG right away. She went on Mestinon but rapidly worsened so she had IVIg and thymus gland removal 3 months ago. They helped somewhat but she is still very fatigued and has muscle weakness. She just started birth control .
Treatments
- IVIG Working / Worked
- Had severe headache when treatment was "pushed" in 3 hrs. Did ok with 4 hr. treatment.
- Mestinon Working / Worked
- Not sure she's getting enough or too much.
- Thymectomy Working / Worked
- We'll see. Can't recommend Dr. Diana Farmer at UCSF highly enough. My daughter has 3 small scars in side from scopes. That's it.
Close Glaucoma
My 15 yr old daughter has just been diagnosed with glaucoma and already has "loss of visual field" in her left eye. She was also diagnosed with generalized myasthenia gravis when she was 13.
