Ah, the joys of Narcolepsy
March 7, 2009 4:28am
Did you see that time stamp there? Yep, that's right, it's quarter after 4 in the morning. I woke up at …
Kidlet
11:39am Yesterday
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About Me
Kidlet
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About Me
Proud mother of one four-legged furkid (yeah, that's her in the pics), and her daughter, born 12/29/08. The two of them are my stress-inducing stress-relief (I imagine anyone with pets or children can relate). Their people dad is the other love of my life, although he's not always the most understanding person when it comes to medical issues. Recently let go from my job of several years at a company I was truly dedicated to and am having a really hard time accepting the changes and preparing to move on. Feels like the floor fell out from under me and I'm not sure if I can stand up again. Live in a big house with my boyfriend, our dogs, and a few months ago my parents moved in with my siblings (19 & soon to be 18, yay!) and their menagerie: 2 dogs, 4 cats, and 2 birds. If nothing else, life around here is always distracting!
Proud mother of one four-legged furkid (yeah, that's her in the pics), and her daughter, born 12/29/08. The two of them are my stress-inducing stress-relief (I imagine anyone with pets or children can relate). Their people dad is the other love of my life, although he's not always the most understanding person when it comes to medical issues. Recently let go from my job of several years at a company I was truly dedicated to and am having a really hard time accepting the changes and preparing to move
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Interests
Reading, writing, sleeping. Sleeping less and less, thanks to finally being diagnosed with Narcolepsy and starting treatment.
Reading, writing, sleeping. Sleeping less and less, thanks to finally being diagnosed with Narcolepsy
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Recent Activity
Recently:
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3 hugs given, 3 hugs received, 1 group discussion post, 1 discussion post, 1 journal comment
Yesterday
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Kidlet updated their status 11:39am
Can anyone tell me if I'm awake yet or not?…
Saturday
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Kidlet updated their status 8:28am
Bleh. Tired and overwhelmed.…
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Kidlet changed their mood to OK 8:28am
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Kidlet gave FrmDeb2U a prayer 8:03am
Great! Glad to hear you so upbeat. I can tell you that if the other side thinks your case is solid and…
Friday
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Kidlet and CantWakeUp are now friends 10:20am
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Journal
This entry is private
This entry is private
This entry is private
This entry is private
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Hugbook
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Chocolate
:) I think it went pretty well.. and my atty.'s said I did a great job. :) My atty. is thinking we can settle it instead of going to court which is what I would like... just not sure when it will settle. He did say that he will be working on settlement while it's fresh on everyones' minds. :D I would love to have this settled around Christmas!! lol Although.. I'm not holding my breath. :) Thanks so much for asking!! I hope you have a good weekend! hugs, Debbie
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Hug
Wow...it's like you're reading my mind. I constantly question whether I really have narcolepsy or not. I mean - it's obvious I do but there's that little part of me that wonders if everyone else is right. What if I'm just as lazy as they say I am? Heh, just today I told a girl I enjoy our lecture class and she replied, "Why? You sleep through it anyway." >.>
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Hug
Thank you for the sweet journal comment. I truly appreciate your kindness and support. hugs, Debbie
Hug
HI SWEETIE, WELCOME TO THE CLUB!! HOPE YOU ENJOY ALL THE GREAT AND CRAZY PEOPLE THERE...LOL..... LINDSEY:)
Funny Face
Hi there KIDLET....and a big warm hearty welcome to CLUB FUNNY BONE! I sure hope YOU will enjoy the nonstop fun & laughter...day in and day out! HUGZZZ & MOOZZZ.....Willgord.
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Photos
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Support Groups
Close Narcolepsy
Just dx'd in September '08. N explains so much! I'm so happy to finally have an answer to so many things and be on my way to getting it under control.
Treatments
- Concerta Somewhat Helpful
- Trying 18mg again now that I'm back on my regular dose of Effexor XR. So far, no anxiety or ridiculous irritability. Mornings are still a disaster, but once I can function, I feel better longer.
- Provigil Somewhat Helpful
- Immediately after starting, my chronic pelvic pain returned because it messes w/ birth control. W/i two weeks, I had daily afternoon headaches that feel almost like migraines without the "extras" (i.e, light sensitivity and nausea). On the other hand, I have not felt jittery or nervous, and I can stay awake until lunch!
- Ritalin Somewhat Helpful
- Trying a lower dose of Provigil to hopefully avoid the headaches, and Ritalin 1-2 times a day. I will probably need to increase the dosage, but I'm holding of for awhile, as I do not want to go too high too soon and end up with a tolerance and nowhere to go. As long as there is no anxiety, we've got room to play w/ the dosage.
