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  darlenek (10/03/08)

  Hi, This is Darlene. I don't know if you read my response to you on Sept. 29th. Don't you get nursing for your son? Didn't the hospital send you home with a nursing company for support? I know how you are feeling. I felt that and it was harder to be around "normal children". Seeing what they were doing. I have two older children and it's hard on everyone. I wouldn't think about what Emily couldn't do, but what she could do. I would be so thankful for a good day and thank the Lord for it. On bad day I would pray for the strength to get through it. IT DID GET BETTER. Your son is still recovery. Emily has taught us patience. The Lord and Emily work on their time. Just pray to get through one day at a time. Don't think about tommorrow or next week that will be soon enough. Please don't give up on yourself or your son. We spent 3 and half months in the hospital. I came home not feeling like I belonged there. I also thought that when we got home things would be better they weren't at first. But it does get better. That was 9years agon. The dr.'s told us that Emily would never come off the vent. Now she is only on it when she's asleep. She had a gtube for feeding. She had the gtube taken out about 5years ago. She uses a walker, crutches, or a wheelchair. I through a time when I was so scared that something else would happen to Emily. Emily lives as normal a life as she can. Somethings we have to modified so she can do it. But she's active. You are in my thoughts and prays. If you get this email please let me know. I am here if you want to talk. We now live in North Carolina and Emily is in 5th grade. Do I know what her life is going to hold for her? No,but I know she will have a life. Will it be as easy as my older children lives. Proably not,but support and help she will be able to have independent life. So please don't give up.