Bobbi0725's Journal

Well, it's been a few weeks since I have journaled about the Xyrem, so I thought I would update everyone:

I have been on the Xyrem since the middle of August and people around me tell me that they see a big difference in my energy and personality (all for the better....LOL).  I  do feel better, but I was hoping for faster results.  I do tend to be an impatient individual so I suppose I should work on that <grin>.   I do still have periods of time where I don't want to be around anyone else or talko anyone because I feel "foul".   That usually happens going into the late evening and is gone by the next morning and is usually just me......not anything anyone has done.  Grrrrrrr.......so frustrating.   I have gone 3 weeks without an appt. at the clinic.  I do have to go back sometime next week, but it has been nice not having to drive there every week since it is on the other side of town.  After this part of the study is over, I will roll right into the next study and then the doctor can "fiddle" with the dosages to get it right for me.  Right now, I am on a set amount......either 4.5 mg, 6 mg or none, so I'll be glad that he can prescribe it specific to me.   I think then I may be able to go beyong the 5-6 hours of sleep.........maybe I'll get to 7 or 8 hours.  I can only hope :)   I will encourage anyone out there to seek out these medical studies if you feel compelled.  Noone wants to be a guinea pig, but in order for us to be able to go forward in a cure or at least a helping hand with fibro, someone has to do it.   We not only help ourselves but we help those in our fibro community, now and in the future. 

Everyone have a great evening.  I will try to journal again soon.

Much love and appreciation to each and every one of you!!!!

Bobbi