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  • About Me

    Image of mamato5

    mamato5

    Female
    Akron, NY, USA
    Member since August 9, 2008

  • Recent Activity

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  • Journal

    • This entry is private

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  • Hugbook

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    • Present

      From lovesJesus December 9, 2008

      Sending you lots of hugs and love. Hope things are good your way!

    • Hug

      From lovesJesus November 24, 2008

      So good to hear from you! So are you going to be back; I have a ton of questions that I wanted to ask you.

    • Hug

      From lovesJesus October 21, 2008

      Just wanted to see if your still around!! (((HUGS)))

    • Flower

      From lovesJesus October 13, 2008

      Always a good day for flowers!!! Right back at ya!!

    • Hug

      From lovesJesus October 11, 2008

      Good morning!! Hope you have a great weekend! (((HUGS)))

    Read Hugbook

  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Seconday Progressive MS

      I am the mother of 5, 46 years old and have been diagnosed since Jan. 2006.I have had symptoms of MS since I was in my late teens, but no one could find out what was wrong.Dr's blamed it on stress and since I have 4 children w/ Tourette's Syndrome I thought they were right.Am trying to enter job market but am afraid of cognitive issues/ confusion, etc.

      Treatments

      Copaxone Working / Worked
      Can feel like a bee sting, leaves painful lumps, itching . I use a warm pack after injecting and it feels better.
      Novantrone Working / Worked
      Amazing. I can feel my feet 'tickle', my hands usually feel like I am wearing gloves *sigh, but am starting to feel soft things. Usually take in conjunction w/ steroid infusion, get intense heartburn, fatique and symptoms tend to get worse for approx. 1 week after infusion. This medication is working for me, just had another MRI and have no new lesions since the last one- 14 months.
      Prednisone Somewhat Helpful
      always feel sick after , I never get energetic- only intense fatigue, confusion, unbalanced ,muscles feel very shaky and weak, after about a week, I start to feel better, sometimes forget there is anything wrong , but then the symptoms start again...grrrrrrrrrrrrrrrrr.
      Cymbalta Working / Worked
      I find this medication amazing. I had intense sporadic random shooting nerve pain a friend calls them ice pick pains which is about right for years sometimes often sometimes not I started getting them in my ears .oh...my....goodness...My neuoro prescribed Cymbalta and the very next day they were faint pokes. Now 6 months later...I dont have any. I am grateful and love this medication. I have not noticed any side effects except the absence of anxiety
  • Friends


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