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ceri12 
2:58am, November 14, 2008
I would like to meet people with or parents of children who are Ataxia sufferers. I know almost nothing about this condition but need to learn quickly to enable me to help my daughter as much as i can.
At the moment i,m in shock to discover that Jade has this condition. I,ve always known there was something wrong, but this is a bolt out of the blue and i,m wandering round lost here trying to get as much information on the condition as possible.
If anyone can help me in this quest, I will be eternally grateful.xxxxxxxxxx
Comments
Today i spent another day looking round the net for as much info as possible on Ataia. I haven,t come aross nything positive to say about th condition. I,m so fed up. I got the bad news about my Jade. Now i want positives to work on for her. sighs. I,ll keep looking!!!!!
ceri12
Hey there, I know it is scary to hear this diagnosis of ataxia. There are many types of ataxia. I am 49 years old and have spino cerebellar ataxia (sca). Please feel free to contact me re this and send me a link to the specific type your child has. First and foremost have faith and maintain an upbeat attitude. You know I live by the attitude that Things are only as bad as we allow them to be....
mtvarney
HI mtvarney. We are waiting on my results from the hospital to determine which type Jade has. I did,nt even know Ataxia existed until Jade was diagnosed with it.
Its a real pleasure to meet you hun. and ty fo caring enough to answer my posts. I hope we become big friends. ceri.xxx
ceri12
Now i,m going to fight back with this Ataxia. I have heard the bad news. not looking on the net anymore. brain overload.lol. If i have any questions , i,m going to ask my friends on here for advice and support, which is wonderful. especially the fact of knowing that Jade is not on her own. There are people here with the same or similar condition as Jade has and a host of other disabilities. Mtvarney hun. A huge hug to you sweetheart. you,ve really pulled me through the rough part out into the light. thank you so much for that. we will always remain great friends. and ty to the rest of you as well for being there for not only Jade but me as well. You are great people who i,m honoured to get to know. Thank you everyone. Ceri.xxxxxxxxxxxxx ( hugs from Jade tooxxxx)
ceri12
My neice and nephew were both diagnosed within the past couple of weeks with Ataxia Telangiectasia my heart is breaking in half knowing the out come of this horrific genetic disorder. :-(
MsJosephine