n2beingme

Open Fibromyalgia

I am struggling with trying to get a proper diagnosis. Back in December 2004 my whole life changed overnight. But in the information and research, many things I can see fit together and were blazing warning signs but I had no idea I was suppose to be looking for something. I ent to bed fine and woke up with bone crushing fatigue, swollen joints, that were red and pain in my lower back I have never experienced before. I was not able to walk or move. That started this journey.

Treatments

Aqua Therapy Somewhat Helpful

Ok, not sure exactly what you mean by this, since I see hot tub underneath. I cannot go in a hot tub, since I cannot tolerate extremely hot water. I used to be able to go in a hot tub, but ever since my life changed, it literally burns my skin. What does help is a heated pool where I can dool water aerobics or water walking. The only side effect is getting out of the pool, is severe pain in my lower back from the gravity or readjusting to the gravity.

Cymbalta Working / Worked

No side effects, seems to help

Duragesic Patch Not Working

This did not work for me at all. For some reason the patches would not stick to my skin, no matter what I did. I even called the company and they sent me larger clear patches like what secures IV's and the such in the hospitals, but they would not stick to my skin. I made sure my skin was free of any lotions, creams, nothing, it was freshly washed - Oh well

Ultram Not Working

This was a total joke

Open Irritable Bowel Syndrome (IBS)

I have been dealing with IBS for several years as part of Fibromyalgia and Chronic Fatigue. It has just gotten worse due to more meds I need to take for my Psoriatic Arthritis and Depression & Anxiety that have caused many problems.

Treatments

Avoid Certain Foods / Chemicals Working / Worked

This seems to help.

Colace Too Soon to Tell

I was using this on an intermitten basis but have now gone to everyday use. Before when it was on an as needed use it worked, but will see what results I get with an everyday use.

High Fiber Diet Somewhat Helpful

Seems to do good.

Miralax Too Soon to Tell

My doctor just had me start using everyday, so we will see.

Peppermint Somewhat Helpful

Have used in the past.

Probiotics Somewhat Helpful

I am thought this was helping before addition

Psyllium Working / Worked

I do take this and seems to help at times.

Open Separation Anxiety

I am a single mom of a 7 year old boy. I left his father when he was 4 months old. In late 2004, I became ill and life changed drastically for me and of course it impacted my son's life. In 2007, I became unable to work any more, so for the first time, I was able to be home with my son and he no longer had to be in daycare. It caused me to totally re-evaluate my life, but my son has great separation anxiety.

Treatments

Pets Somewhat Helpful

Open Anxiety Disorders in Children

I am a single parent of a 7 year old son. His father is not actively involved in his life. He may call every once in awhile though. My son suffers many stomach aches due to stress and anxiety. I got very sick in 2004 and had to stop working in 2007, so he worries about that.

Open Myofascial Pain Syndrome

Open Crohn's Disease & Ulcerative Colitis

Open Psoriasis

Looking for support and offer support from others who truly understand what it is like to suffer from psoriasis. I have both psoriais in my skin and joints.

Treatments

Dovonex Working / Worked

This really used to help at least

Elocon Working / Worked

It does not take the psoriasis away, but helps to calm the skin.

Enbrel Not Working

I used for a period of time and did not see an change.

Methotrexate Working / Worked

I have been using for for 5 years now with a few breaks in between. It does nothing for my joint pain but I am having more and more outbreak in my skin now though.

Humira Not Working

This worked really great for the first 3 months. My energy levels returned to preillness I was estatic. Than it just stopped and crushing fatigue returned and stayed.

Remicade Not Working

This did work for me since after several infusions my SED rate was greatly improved which was that first time it moved downward. However during an infusion I had a life threatening reaction. I remember waking up to the Rapid Response team......