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About Me
Gypsyw
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About Me
Married, have a daughter who has given me a son-in-law and two great granddaughters. I retired and enjoy writing, painting, decorating, but mostly spend days resting. Unfortunately had to retire early because of lupus. I have had lupus for about 17 years and hate it.
Married, have a daughter who has given me a son-in-law and two great granddaughters. I retired and enjoy writing, painting, decorating, but mostly spend days resting. Unfortunately had to retire early because of lupus. I have had lupus for about 17 years and hate it.
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Thank you for your support...its hard ...but great to find help thru friends!
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Close Lupus
Have had lupus for about 17 years. My whole life has changed. Finally learned to live with it, but it took a long time. Still searching for a reason as to why I have this disease.
Treatments
- Azathioprine Not Working
- Took it for 2 yrs, did not get any better. Did not have any side effects from this one.
- Cellcept Not Working
- Again, did not have any relief. Only took for about 6 months.
- Medrol Working / Worked
- Take this when flare ups are really bad. Yes it works well most of the time.
- Methotrexate Not Working
- Took this for 18 months w/o good results. Made me so tired and I seem to felt worse. Took it again this year and had a really bad reaction to it, so cannot take anymore.
- Plaquenil Working / Worked
- Doctor says it helps a lot. Scared to stop it, just in case it is helping.
- Prednisone Working / Worked
- Every flare up, I take the prednisone. It's the only thing that makes me better and quickly. I don't want to take it on a regular basis. Can't sleep while on it and it makes my mitral valve prolaspe worse. Really hate this drug, but sometimes it seems like it saves my life.
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