Journal

I just created a couple polls on my website to find out the reasons why most people don't have their own website to tell their Neurofibromatosis stories and if they do have their own website, why don't they promote it so it can be found.

I'm hoping to create more helpful content in the near future and the results of these polls wil help me decide what future videos and blog posts should be about.

I'm anxious to see the reasons different people have.  Give your vote now

I just set up a donation goal on my site that I'd like to reach by the end of 2009.  I want to get $100,000 in donations for the Children's Tumor Foundation through my Neurofibromatosis charity badge.

I've also included a video with Kevin Bacon that will hopefully help to raise awareness about our cause.  I've read several posts from people saying we need a celebrity on our side to help raise awareness and we do.  Kevin may not be directly related to NF, but he has helped to make it possible for people like us to raise money for our cause. 

Read about the Neurofibromatosis donation goal