Journal Entry for June 11, 2009
Just did a blog post about my new section that has Neurofibromatosis books and articles
I'm a 34 yo male with NF1 living in beautiful, sunny Florida. I'm looking forward to meeting all the great people on the message board. I've been spending a lot of time lately working on my website NeurofibromatosisResearch.com. I've had this domain for a while, but as my NF gets worse, I feel the need to work on it.
I'm a 34 yo male with NF1 living in beautiful, sunny Florida. I'm looking forward to meeting all the great people on the message board. I've been spending a lot of time lately working on my website NeurofibromatosisResearch.com. I've had this domain for a while, but as my NF gets worse, I feel the need to work on it.
Music, flying RC helicopters and airplanes, tattoos
Music, flying RC helicopters and airplanes, tattoos
Just did a blog post about my new section that has Neurofibromatosis books and articles
I just created a couple polls on my website to find out the reasons why most people don't have their own website to tell their Neurofibromatosis …
I just set up a donation goal on my site that I'd like to reach by the end of 2009. I want to get $100,000 in donations for the …
I just created a Neurofibromatosis charity badge for the Children's Tumor Foundation. Just another thing you can do when you have your own …
I've been spending a lot of time on my website lately and just finished doing a video about how to start your own personal website to tell your …
I hope that frown has turned around.
Poor baby, maybe a little sunshine will warm you up. lol.
I read your post about swinging. Not for me but if it works for you, than ok! I dont know this for sure but I would think that swingers are more open to different kinds of people. (ie:race, religion, gender) It is easy for me to say dont worry about your looks let people like you for whats inside but thats not the way the world works. I would think if someone is attracted to you they will not care about bumps, lumps, pimples, love handles etc!!! If they do then move onto the next!!
Be strong! Hope you have a great weekend. ^_^
Thanks.
I have NF1 and I want to know why the doctor's can't cure it.
Interested in helping others.