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  • About Me

    Image of evabat

    evabat

    Female, 25
    Port Royal, SC, USA
    Member since July 31, 2008

    • About Me

      i have RSd and fibromyalgia and other chronic pain issues. Post laminectomy syndrome and or failed back syndrome and multiple other health issues. I like to meet new people, watch tv, go to the movies when i have the chance, watch movies on tv at home, watch tv and spend times with my friends and online.

      i have RSd and fibromyalgia and other chronic pain issues. Post laminectomy syndrome and or failed back syndrome and multiple other health issues. I like to meet new people, watch tv, go to the movies when i have the chance, watch movies on tv at home, watch tv and spend times with my friends and online.

    • Interests

      Tv, Internet, do research , volunteer to help orginations of the health issues i have, go to medical conferences about my issue or things i am dealing with like rsd and tube feedings etc.

      Tv, Internet, do research , volunteer to help orginations of the health issues i have, go to medical

  • Recent Activity

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  • Journal

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  • Hugbook

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    • Flower

      From Jane1234 February 13

      HAPPY V DAY... :)

    • Get Well Soon!

      From BSPUNKY December 3, 2008

    • Hug

      From lovewins November 2, 2008

      hope you feel better

    • Hug

      From iluvjava September 27, 2008

      Hey, Just wanted to send you a hug. I am also on bed rest 18 hours a day. Message me if you want to chat. Brenda

    • Hug

      From johanJJ September 26, 2008

    Read Hugbook

  • Support Groups

    • Close Reflex Sympathetic Dystrophy

      i have had rsd for about 13 years which they think i got shortly after back surgery but took a collison with a 230lb male ice hockey player to make it evident after disloctign my left knee

      Treatments

      Lyrica Somewhat Helpful
      lyrica helped with my pain for a little while but now doesnt help anymore
      Oxycodone Somewhat Helpful
      but found out i am allegric to meds under codine etc rashes breathing problems itcheyness and side effects of constipation
      Physical Therapy Not Working
      caused me more pain and made me my pain worse.
    • Close Asthma
      Type: Other

      i have multiple health issues and have had asthma for quite a while, and also have a restrictive lung disease they think that is realted to my rods in my back and have to be on oxygen

      Treatments

      Advair Somewhat Helpful
      works but does does not always help with preventing my asthma attacks
      Albuterol Somewhat Helpful
      worked for a bit in the nebulizer version but does not last that long and have to do multiple treatment is ok as an inhaler but still have breathing issues
      Inhaler Somewhat Helpful
      workes but still have breathign and short of breath attacks etc
      Xopenex Somewhat Helpful
      works well as a nebulizer treatment as needed but is a pain in the butt and does not always combat my issues with being short of breath sometimes
    • Open Anemia

      i have issues with anmenia but it is not treate regularly unless their is a neeed for blood transfussion or it severe enough and have other multiple medical issues

    • Open Environmental Allergies
      Type of allergy: Multiple Chemical Sensitivity

      have multiple medical issusse and allergrys etc to latex and reg allergies

      Treatments

      Allegra Somewhat Helpful
      worked for little bit but then stoped working as well
      Flonase Somewhat Helpful
      worked for a little but did not like the taste it would leaave in my mouth
      Singulair Somewhat Helpful
      works for my asthma but not as well for my allergies
    • Open Migraine Headaches

      have had mirgaines for years but have been uncontrolled as nothihg has worked for longer then about a year

      Treatments

      Acupuncture Not Working
      did not work or help at all
      Botulin Toxin Somewhat Helpful
      workd for about a week then my migraines came back with avengence
      Excedrin Not Working
      did not work at all
      Imitrex Somewhat Helpful
      works but my insurance does not cover enoguh for a months time with how often my migrines hit
      Inderal Working / Worked
      but only worked for a about a year until it effectiveness wore out
      Relpax Working / Worked
      but my insurance did not cover it at all and it was too expensive
    • Open Back Pain

      have multiple chronic pain issues and medical issues along with low back pain and loss of feelign in my legs and failed back syndrome

      Treatments

      Acupuncture Not Working
      did nto work or help me at all
      Bedrest Somewhat Helpful
      but does not help when it really bad
      Epidural Injection Working / Worked
      helped so i had a pain pump placed
      Fentanyl Working / Worked
      has helped to make it livable
      Heat Somewhat Helpful
      helps a little bit but only for the time it on
      Morphine Working / Worked
      has help to make it dealable to some degree
      Physical Therapy Not Working
      did not work at all or help at all only made my pain worse
      Relaxation Somewhat Helpful
      helps to somedegree
    • Open Chronic Pain

      have multiple medical issues and chronic pain issues

      Treatments

      Cymbalta Not Working
      did not work at all
      Flexeril Working / Worked
      worked for the time i was on it but my dr now wont prescribe it
      Heat Somewhat Helpful
      works while it on the area
      Lidoderm Somewhat Helpful
      works but does not stay on to well
      Lyrica Somewhat Helpful
      only workd for about a year and then the effectiveness wore off
      Morphine Working / Worked
      works to make the pain tolerable
      Nerve Blocks Somewhat Helpful
      worked but only for a short time then made me worse
      Neurontin Not Working
      did not work and made me spaced out and forgetful
      Physical Therapy Not Working
      did not work and made my pain worse
      Topamax Not Working
      did not work and found out i was allergic to it
    • Open Epilepsy & Seizures

      have had what a dr thought might be a seizure but has not been totally confirmed and have many other medical issues

      Treatments

      Trileptal Somewhat Helpful
      but had what my primary thoguht was a seizure or of origin of one while i was am/was taking it
    • Open Pancreatitis

      i had panceratitis and now have mutiple other stomach issues

    • Open GERD & Heartburn

      have multiple gastroinestinal issues eventhough i dont eat and have a feeding tube for one of my other gastro issues

      Treatments

      Aciphex Working / Worked
      worked but still have mutiple issues of Gerd eventhough i dont eat
      Domperidone Somewhat Helpful
      works for a little then looses it effetiveness
      Nexium Somewhat Helpful
      worked for a couple years then lost it effetiveness
      Prevacid Not Working
      did not work at all for me
      Prilosec Not Working
      did nto work at all for me
      Protonix Somewhat Helpful
      works but my insurance wont pay for it unless it when im in the hospital
      Raising Bed Position Somewhat Helpful
      works for as long as i am comfortbale in the postition which is not always that long
      Reglan Somewhat Helpful
      works for a little then becomes a not a effecitve
    • Open Gastritis

      have mutiple gastrointestinal issues and have chronic gastritis

      Treatments

      Levsin Working / Worked
      helpes a quite a bit but still have a lot of issues stomach wise
      Protonix Somewhat Helpful
      but my insurance will nto cover it unless im in the hospital
      Aciphex Working / Worked
      but have to pay for it out of pocket bc my insurance will not approve it
    • Open Urinary Incontinence

      have issue with incotinece and neurogenic bladder and multiple other health issues

      Treatments

      Diapers Somewhat Helpful
      but does not work well enough bc of major accidents etc
      Kegel Exercise Not Working
      did not work at all
      VESIcare Not Working
      did not work at all
    • Open High Blood Pressure

      have mutiple medical issues and have issues with high blood pressure quite often

      Treatments

      Clonidine Somewhat Helpful
      works but still have issues with high blood pressure somtimes more often then i would like
    • Open Other Heart Problems
      Type: Mitral Valve Prolapse

      have a few issues with my heart rate and few other minor issues

    • Open Arrhythmias
      Type: Tachycardia

      have multiple medical issues and sinus tacacardya

    • Open Pulmonary Embolism

      i had been told by a ct scan that i have a pe in my lung but then they could not figure out why or where it came from

    • Open Pleurisy

      have had a few episodes of pleurisy and still have the symptoms i did when i had it

    • Open Arthritis

      have a few arthritis conditions

      Treatments

      Arthrotec Working / Worked
      but use it in a voltaren gel verion
      Daypro Not Working
      did not work at all
      Glucosamine/Chondroitin Somewhat Helpful
      worked for a little bit
      Pain Management Clinic Working / Worked
      has helped to make my pain manageable
      Voltaren Working / Worked
      has helped quite a bit
      Celebrex Somewhat Helpful
      worked for a little bit then became not so effective
      Lyrica Somewhat Helpful
      did not work for very long
    • Open Degenerative Disc Disease

      have had issue with ddd

    • Open Degenerative Joint Disease

      have mutiple joints with degeneration

    • Open Scoliosis

      have had issues with scoliosis and had surgery wheni was 10 or 11 and now have rods but havign mutiple issue with my back now

      Treatments

      Harrington Rods Working / Worked
      worked until i started to have failed back syndrome and now having a lot of back pain
    • Open Lupus

      had a postive ana test but has not been comfired lupus ans was told the postive ana means nothign

      Treatments

      Celebrex Somewhat Helpful
      worked for a bit but not anymore
    • Open Fibromyalgia

      have has fibromyalgia diagnosed secondary to Reflex sympathetic dystrophy and have multiple other medical issues

      Treatments

      Acupuncture Not Working
      did nto work at all for me for fibromyalgia
      Cymbalta Not Working
      did not work at all for fibro
      Effexor Not Working
      at the highest doese my dr used made me tired and memory issues
      Elavil Not Working
      did not work at all for me
      Gabitril Not Working
      did not work at all
      Heat Somewhat Helpful
      works while it on the area
      Lyrica Somewhat Helpful
      worked for a little bit then became not effective
      Morphine Working / Worked
      works to make the pain tolerab;e
      Neurontin Not Working
      and made me feel like a zomby and forget
      TENS Not Working
      did not at all for me and did not like the senation of it
      Ultram Not Working
      did not work at all for me
    • Open Bedrest

      have have been on bed rest for many health issue s

    • Open Medical Mysteries

      have been a array of medical mystery from stomach issues to fevers and other medical problems dr still cant toally explain

    • Open Pet Bereavement

      have had death of mutiple pets i was attached to

    • Open Female Sexual Issues

      have had a few female sexual issues

    • Open Sciatica

      have has issuews with siactia for years

    • Open Polycystic Ovarian Syndrome (PCOS)

      have have had multiple issues with cysts on my overys and issues with irregular periods

      Treatments

      Oral Contraceptives Somewhat Helpful
      but still have has issues with cyts and irregualr periods
      Progesterone Somewhat Helpful
      worked for a little but would have break thorough bleeding quite often
    • Open Colds & Flu

      Treatments

      Chicken Soup Not Working
      does not help usually get more sick tryign to eat when i have the flu
      Vicks VapoRub Somewhat Helpful
      helps a little bit
      Vitamin C Somewhat Helpful
      but does not compleatly stave off the flue or cold
    • Open Hypoglycemia (low blood sugar)

      have had issues with low blood surger quite often

    • Open Insomnia

      have issues with insomnia and other sleep issues

      Treatments

      Ativan Somewhat Helpful
      works a little bit but not all the time
      Halcion Somewhat Helpful
      worked for a little bit
      Lavender Somewhat Helpful
      helps to relax me a little bit
      Lunesta Not Working
      did not work at all
      Meditation Not Working
      does nto work at all for me
      Music Somewhat Helpful
      helps me get somewhat relaxed
      Pamelor Not Working
      did not work at all
      Rozerem Not Working
      did not work at all
      Sonata Somewhat Helpful
      works a little bit but not all the time ans does not keep me asleep
    • Open Interstitial Cystitis (IC)

      have had issues with a painful bladder and have issues with a lot of utis

      Treatments

      Macrobid Working / Worked
      while i was on it
      VESIcare Somewhat Helpful
      workd for a little bit but not anylonger
    • Open Multiple Sclerosis (MS)

      have has what dr have thought might be symptoms of ms but have not been comfirmed

      Treatments

      Baclofen Somewhat Helpful
      has helped some
      Neurontin Not Working
      did nto work made me forget and be a zomby
    • Open Pneumonia

      have had a few episodes of pnemonia ans stil have breathig problems

      Treatments

      Prednisone Somewhat Helpful
      has helped while on it
    • Open Peptic Ulcers

      have had isuses with ulcers

      Treatments

      Aciphex Somewhat Helpful
      has helped some
      Levsin Somewhat Helpful
      has helped some
      Nexium Somewhat Helpful
      worked for a little bit
      Pepcid Not Working
      did not help at all
      Prevacid Not Working
      did not work at all
      Prilosec Not Working
      did not work at all
      Protonix Working / Worked
      has helped but insurance will only pay for it when im in the hospital
    • Open Pseudotumor Cerebri

      i was dignosed with pseudotumor a couple weeks ago and lost most of my sight in right eye which im told is permenent i also had a stroke occur in the same eye when everything began.

      Treatments

      Alphagan P Working / Worked
      it helped some it deffiently kept my left eye from having any issues so far and has helped not to have anymore damage to my right eye which us the affected eye
      Prednisone Working / Worked
      has helped with the immflamation i had in my eye when it was severly inflmmed shut when the issue started
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