Personal Update......
July 29, 2009 10:52pm
7.29.09
Well, it's been awhile since I've been back to the DS forum.....it's been a rough 4 months. Last time I posted I …
Lifespalette 
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About Me
Lifespalette
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About Me
Architectural Designer Heartaches and pain in life aren't options....misery is a choice.
Architectural Designer Heartaches and pain in life aren't options....misery is a choice.
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Interests
My art work, fly fishing, restoration work of old building.........good wine and Memphis Tiger basketball.
My art work, fly fishing, restoration work of old building.........good wine and Memphis Tiger basketball.
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Recent Activity
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Journal
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Hugbook
Hug
thats allto let you know your missed
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Hug
thats allto let you know your missed
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Hug
So good to hear from you..have missed you...I just read one of your posts and you always add so much...thanks for your thoughts !
Hug
Youre back :) but you are back on with a sad face is everything alright ? Leaving you with a hug
Shout Out
Haven't heard anything from you in a long time. I am hoping all is well with you and you have fully recovered from your last medical drama. Happy Spring!
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Photos
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Support Groups
Close Acromegaly
Diagnosed in 2000 with 2.5 cm pituitary tumor and IGF-1 level over 1200.
Treatments
- Octreotide Working / Worked
- Daily injections only got my IGF-1 level down 446, 14 months ago my new Endo put me on 10 mlg injections and no my level is down to 127 as long as I say on the monthly injections. The injection hurts, but the medicine burns for a couple of days. Heating pad helps.
- Gamma Knife Not Working
- Procedure long not really painful other than the screws in the skull thing. MRI mapping wasnt that fun since Ive developed a case of claustrophobia. Was told to expect some indications 18 24 months. Then 3648 months. Last window was 60 months.......still no signs it worked. If Im off the injections the IGF1 level starts to rise again. Looking back I would say the nearly 90000 cost was a waste.
