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  • About Me

    Image of joysanders

    joysanders

    Female, 28, Married
    Olathe, KS, USA
    Member since July 28, 2008

    • About Me

      I am a 28 yr old. I am a hard working mom and wife. I have been maried for almost 7 years. I have two wonderful children, 5 and 11.

      I am a 28 yr old. I am a hard working mom and wife. I have been maried for almost 7 years. I have two wonderful children, 5 and 11.

    • Interests

      I love to garden when it is not to hot. I love photography and spending time with my family.

      I love to garden when it is not to hot. I love photography and spending time with my family.

  • Recent Activity

    November 7

  • Journal

    • Migrains

      Mood November 6, 2009 3:28pm

       

      I was asking my doctor the other day what to call the chiari headaches that I get. Because we all know that they are not really headaches. …

    • H1N1

      Mood September 30, 2009 9:35pm

      Monday I started coming down with a cold. On Tuesday the cold was a little worse, and this morning it was unbarrable. The headaches were worse and …

    Read Journal

  • Hugbook

    Give joysanders a hug



    • Hug

      From tony614411 October 21

      have a nice day!

    • Hug

      From withcrazykids August 12

      thank you I'll keep you in my prayer also (I know the prayers work)

    • Flower

      From ppbbls December 7, 2008

      Thanks for the hug. I'm so glad I found this network. Mu husband has been a great supporter, but I'm glad I found a way to lean on someone othe than him all the the time. He deserves a break. And other people might be need me to lean on too. =)

    Read Hugbook

  • Support Groups

    • Close Arnold-Chiari Malformation

      About 2 years ago I was dianosed with Chiari Malformation. I have had this all my life with symptoms but never new what was wrong. In 2006 within a 2 month period my symptoms hit me hard and I was half paralysed when I had surgery. I flew to Colorado to find out I had 99% blockage with my spinal fluid. I was told it would only take another month to be completely paralysed. I had surgery 2 weeks later. The surgery gave me feeling back, but I still have symptoms on a daily basis. I have researched doctors in the area that know something about Chiari. None of them will listen and blame my symptoms on other things like allergies or reqular migrains. My son has started to have symptoms and they cant find out what is wrong with him. We have been refered to an out of state doctor for Pediatric Chiari Patients.

      Treatments

      Topamax Working / Worked
      I had problems with this mediacation making me loopey. I am scared to take anything like it and the doctors in my area wont perscribe anything else.
    • Close Graves' Disease

      I was diagnosed with Graves in Dec 2007

      Treatments

      Methimazole Working / Worked
      Though this taste nasty, I am almost done. I did have an allergic reaction to it when I first started it.
  • Groups

  • Friends


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