I'm 19 years old and I've had pain as far back as I can remember. When I was little I used to complain mostly about my back, feet, and thumb. People would say to me, "everyone has pain, " and for a while I believed them. Eventually, as the years went on, I realized that something was wrong- I was not normal, I did not feel pain like everyone else did. I thank God that He gave me a mother who has always completely believed in the pain I felt, has searched endlessly for my relief, and has never once lost hope in my ability to some day become well. Around the age of 7 I began seeing more doctors than most people have seen in their whole lives. The search began for my becomming well and has still not stopped. Today I have been diagnosed with Fibromyalgia, Myofacial Pain Syndrome, Phantom limb pain, Lyme Disease, TMJ, Painful Flat Feet, Scoliosis, Ostopenia, Insomnia, a learning dissability, and Depression (I think that's all). Like many people on this site, I feel pain daily and am overwhelmed by doctor appointments, medicines, vitamins, and natural remedies. I'm currently going for weekly IV treatments and monthly consultations at the Fibromyalgia and Fatigue Center in Norwalk, CT. It's alot of money and alot of work, but it's the first place in quite a long time that not only understands my pain, but offers me a real solution and some hope. My pain is progressively getting worse, and sometimes I ask myself why God wants me to have this. I don't know the answer and I'm not sure if I'll ever know. What I am sure of, however, is that If God wants me not to have relief, He certainly has an amazing purpose for it. I'm staying hopeful, and seeking others for encouragement/to encourage.
I'm 19 years old and I've had pain as far back as I can remember. When I was little I used to complain mostly about my back, feet, and thumb. People would say to me, "everyone has pain, " and for a while I believed them. Eventually, as the years went on, I realized that something was wrong- I was not normal, I did not feel pain like everyone else did. I thank God that He gave me a mother who has always completely believed in the pain I felt, has searched endlessly for my relief, and has never once
I would describe myself as a very bright person. I love life, I love to write, sing, dance, learn, and listen to music. I'm currently in my second year in community college getting an Associates degree in World Languages and Cultures and eventually a major in International Relatinos with a minor in Community Development or Journalism. I'm an extremely passionate, loving person. My dream is to some day spend long periods of time in impoverished countries, strategizing on ways to solve different crisis in famine, disease, hunger, polluted water, and lack of ways for people to provide for themselves and their families. I believe that God will either use my pain for me to empathize with those I'll meet throughout my life who are in pain, or that He will perform a miricle in allowing me to overcome my pain in order to better serve others.
I would describe myself as a very bright person. I love life, I love to write, sing, dance, learn, and
November 13, 2008 6:09am
There's No Place to Go But Up
I remember that day,When he took my little hand.Said, "want me to take you around?"I pedaled …
ya know what that means don't ya?
Don't open till we chat
Hi, hope you feel better soon!
was rolling thru the site, hope all is well in yer world, here's a hug for ya
Howdy neighbor. Hope you are having a better day. Send me a message if you want to talk to someone else in NJ. Take care and feel better!
I have had Fibromyalgia symptoms my whole life, although it has gotten progressively worse as I've gotten older. When I was younger I realized that my pain was not "normal" and I started seeing every doctor imaginable. I was diagnosed with Fibromyalgia about 6 years ago. I have yet to find any real relief but I'm still hopeful. I've been going to a Fibromyalgia and Fatigue center in Norwalk, CT for about 3 months now.
I believe I've always been a little "down" throughout my life. I was alone quite often as a child and watched my parents have violent fights all the time. When I was in 8th grade a combination of many things in my life led me to attempt suicide. Since then, different things such as God, family, friends, medicines, and becomming more aware of my condition have made me better able to control it. I have clinical depression but it gets especially bad in the fall and winter.
Many people would say I'm not an actual "amputee," but I would dissagree. I was born with an extra thumb and it was removed at 6 months old. I went through a period in my life where I had pain in my thumb (or lack thereof) every single day. Some doctors would call it Phantom limb pain, others would say I hold my emotional pain in this area. Either way, I understand. I may not get the same looks or treatment, because most people don't even realize.. but I feel the same pain as any other amputee.
For a long time I wasn't even sure I had Chronic Fatige Syndrome, since Fibromyalgia so closely mirrors it. Day and night I'm exhausted. Sleep doesn't help-- even to sleep for 20 hours in a day I can still wake up exhausted. At this point, I'm hopeless as far as CFS goes.
Insomnia is probably one of the things i'm struggling with the most right now. I'm on tons of sleep meds and things that should make me feel drowsy. I guess, in a way they work... I feel drowsy ALL THE TIME. At night my mind is asleep, I can't focus, can't concentrate... but my body is so awake- I'm restless, need to get things done. There's days I wind up not falling asleep until 9am. It's a vicious cycle.
I guess, I would say I'm a pretty decent looking person. Yes, it's a blessing... but it's also definately a curse. I'm a loyal friend and girlfriend and I look for people who are equally loyal. Unfortunately, girls are threatened by me, and guys never want to be just friends. This leaves me quite alone all the time. Also, it's nearly impossible to have friends or promise to hang out with someone when you never know how you will feel day to day (fibromyalgia/chronic fatigue).
