spiritheartlady

Close Epilepsy & Seizures

I was born with a seizure disorder called Stergweber Sydrome, so I am disabled and needs medications even a vagus nerve pacemaker to keep me alive to control my seizures and try to stop them and collect Social Security.

Treatments

Avoid Certain Foods / Chemicals Working / Worked

I avoid foods and drinks with M.S.G, Monosodium Glutamate rosemary, non sweeters

Depakote Somewhat Helpful

I took this for 4 years my hair was falling out caused migraines.

Dilantin Not Working

I was on this 5 years did not ever work and disfigured my mouth my father paid allot of dental bills.

Keppra Working / Worked

Works half the time I been on it since the 90's when your pregnant will cause miscarriage.

Lamictal Somewhat Helpful

worked for 4 months and my hair was falling out caused migraines.

Phenobarbital Working / Worked

I been on this since 5 months old to now I addicted to it like a drug addict safe during pregnancy

Tegretol Not Working

Dove me insane and put me in coma.

Vagus nerve stimulation Working / Worked

The first VNS pacemaker was donated to me by Cyberonics and they gave me a defective pacemaker the second one Mediciad and Medicare paid for and works 99% of the time so you are talking to 1999 recieptant and I would not be a spoke person for them because t did not work the first time they wanted me to lie and I said no.

Zonegran Working / Worked

Works half the time been taking it since the 90's when your pregnant will cause miscarriage.

Close Pacemakers

I have Stergweber Sydrome (rare typre seizures) I take Keppra, zonegran, Phenobarbital and have vagus nerve pacemaker which gives simulation to the brain at 2.5 volts a minute, but each pateint differnt can be 1 to 5 volts. You have to be sick more than 5 times a month more likely with grandmals or worse. If you want info go here if you have Epilepsy & Seizures www.cyberonics.com