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  • About Me

    Image of Jennabug28403

    Jennabug28403

    Female, 28
    Panama City , USA
    Member since July 25, 2008

    • About Me

      I'm a 26 yr old mother of a beautiful 2 yr old little girl. at 4 months of age she was diagnosed with NF and I am still struggling with the news. I'm here for her and I to help us both to someday understand all of this.

      I'm a 26 yr old mother of a beautiful 2 yr old little girl. at 4 months of age she was diagnosed with NF and I am still struggling with the news. I'm here for her and I to help us both to someday understand all of this.

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  • Hugbook

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    • Hug

      From chillpill July 31, 2008

      Hope you are doing ok my dear. Hugs

    • Hug

      From chillpill July 26, 2008

      Sending you lots of hugs. You will find lots of support here on DS. In answer to your question YES go and see a specialist THIS IS VERY IMPORTANT. With any luck (fingers crossed) your DD (darling daughter) will only have a mild case. Once again welcome and lots of hugs and best wishes being sent.

    • Hug

      From sydney24 July 26, 2008

      she is cute, u will find lottts of good people here to help u.take care

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  • Support Groups

    • Close Neurofibromatosis

      My daughter is 2 yrs old and was diagnosed with NF at 4 months f age. Honestly I'm still somewhat in denial and struggle with the news. it is hard for me to understand all of this mostlty because there are SOOOOO many different thoughts about it. SHe was diagnosed solely because because of her spots. and not one doctor has yet to sit me down and let me know what to expect. she is my only child and the only one I can ever have. I just want to know Why? What? How? did I do this?............

      Treatments

      Love Working / Worked
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