Progress
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12:36pm Thursday
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About Me
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About Me
Oh...hello there. I am a woman dealing with some serious medical crap-ola and life changes. I need to form a support system to help me cope with all of these changes and I'd like to reach out to those who need an ear or a hug. Being sick isn't very conductive to new social situations. I had to stop working due to my illness so the opportunities to meet new people...well, just aren't there. I am a kind, gentle, honest, kooky, open minded woman that plays well with other non judgmental, kind, open, real people with a sense of humor. I also forget how to spell half the time lately so be prepared to chuckle with your inner English teacher. Before my life became a comedic tragedy, I was a personal chef and natural health consultant. I am living proof that sometimes sh*t just happens no matter how much freaking tofu you eat or how many vitamins you take. People just get sick sometimes.
Oh...hello there. I am a woman dealing with some serious medical crap-ola and life changes. I need to form a support system to help me cope with all of these changes and I'd like to reach out to those who need an ear or a hug. Being sick isn't very conductive to new social situations. I had to stop working due to my illness so the opportunities to meet new people...well, just aren't there. I am a kind, gentle, honest, kooky, open minded woman that plays well with other non judgmental, kind, open,
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Interests
My interests include (but are not limited to): Being happily married, my daughter, botany and gardening, music sweet music...especially traditional music from all over the world, peace, justice, yoga, meditation, the written and spoken word, dogs, cooking & baking, herbology, soap, candle, and paper making, movies, hot springs...well, water in any form...living in the desert does that to you. I am also a fan of espresso, tea, nutritional health, seeking the truth in all areas of my life, spirituality VS dogma, evolution, change, the balancing act of integrative medicine, occasional sarcasm as a coping mechanism, and hope... I am a big fan of hope.
My interests include (but are not limited to): Being happily married, my daughter, botany and gardening,
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Journal
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Hugbook
Celebration
Hope you are having fun! Have a wonderful evening. (((HUGS)))
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Hug
Hi, Thanks Tam for the explanation. I think you described it very well because that is what has been happening for me. I am hoping that one day I will not have the tightening on my skin at all. The wrist area and my hands have softened considerably but there is room for alot of softening in my arm between the wrist and elbow. I work very hard at not focusing on what I can not do, but I am hoping to find my arms "normal" again. I am truly grateful for the progress. I know you will understand what I am talking about. love & hugs to you! Toshie
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Little Love
It was a very nice day here for change. The weather is so unpredictable. I sure hope you get a chance to do your garden because I know how much you enjoy it.
It is time to put all the roses to bed. Cut most of them down already. Next I have to cover with those styrofoam cones. It does protect them for the winter.
Dolly and Koko are such good friends now. It is fun to watch them play.
I found out that the new remedy is Lepro which has something to do with leprosy. Kind of scary but fascinating at the same time. I really don't understand homeopathy very well, but if it works don't fix it I guess. lol Have a good night.(((HUGS))) -
Ray of Sunshine
Heard Phoenix had 90's the other day. I am hoping you send some warmth this way,lol! Hows your garden doing? Hope you have a good day! (((HUGS)))
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Chocolate
Happy Halloween to you too...a little late cause it is after midnight! Got back late from the conference. Went all day and stayed for the dance. Stiff but enjoyed dancing. Hope you had a good evening. Sleep for me now. love & hugs!
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Photos
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Goals
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Support Groups
Close Fibromyalgia
I call it BODY THAT DOES NOT FEEL GOOD Syndrome, as my body converts most signals into pain signals. I manage my health with integrative medicine...a blend of allopathic and holistic treatments for (hopefully) optimal results.
Treatments
- Acupressure Working / Worked
- My husband is good at chasing the spasms and putting pressure on them...stops them in their tracks or makes them hide...either way, it works.
- Baclofen Working / Worked
- Migraines at first, now I am starting to feel good results...not just side effects. Very helpful!
- CranioSacral Therapy Working / Worked
- Holy cow! This is the most effective, non evasive form of body therapy I have tried. The release I feel from this is almost sacred. I found a wonderful provider that worked out a payment plan for me. I consider it to be more powerful than any medicine I take so for me it's more than worth the money.
- Gluten Free Diet Working / Worked
- Within 2 weeks, a GF diet has lessened my inflammatory response! REALLY.
- Magnesium Somewhat Helpful
- Swimming Working / Worked
- Reallllly helps!!
- Ultram Not Working
- I am not having good results with this. Better than nothing... but not by much. Side effects include loss of appetite (have lost 40 lbs. in 8 months), feeling 'spacy', rebound pain, and withdrawal symptoms if I'm late with the dose. DR will not prescribe any other pain med for Fibro so I'm stuck with it. YAY!
- Vitamin D Working / Worked
- Despite living in AZ, my Vit. D level was almost nonexistent. I took 50,000 units once a week for 8 weeks and now maintain with 2,000 units a day, mixed fish, flax, and borage oils, and sunscreenless morning gardening. Get your D level checked!
- Yoga Working / Worked
- Helps maintain some of my flexibility and sanity. I have practiced yoga for 21 years. I still have a strong body core because of it, regardless of the loss of flexibilty and having to eliminate all poses that use the hands, knees, lower back, shoulders or head as the weight bearing body part. Yoga is SO much more than headstands and stamina. The word yoga means union...of the body mind and spirit.
Close Degenerative Joint Disease
DR termed this normal at first, before the spinal involvment, due to being a chef for 18 years. Normal? At 36?
Treatments
- Anti-Inflammatory Diet Working / Worked
- Food is medicine! I repeat, food is medicine. Following a diet rich in a balanced ratio of omega 3-6-9, lots of ginger, tummeric, garlic, veggies, fruit, fish, chicken, and beans has helped imensely. I also totally avoid nitrates, alcohol, plants in the nightshade family (except the occasional potato or tomato product), carbonated beverages, most processed food and the industrial waste product known as "fast food".
- Calcium Somewhat Helpful
- I use a high quality food and herbal based calcium and mineral suplement that includes digestive enzymes. I also take extra magnesium and malic acid to ensure absorption.
- Gluten Free Diet Working / Worked
- Within 2 weeks a GF diet lessened my inflammatory response. The damage has been done...hoping to have halted any further damage other than normal wear and tear.
- Meditation Somewhat Helpful
- Takes me to a pain reduced happy place for a short time by allowing my brain to focus on my breath, a mantra or single word, or an image instead of the mind numbing pain. If I could live in a constant meditative state I probably would so I try to make mundane activities...meditation. Breathing, walking, gardening, and cooking all are examples of that.
- Mobic Working / Worked
- Helps! I can not move on a rainy day without this. I have lowered my dose in half since my vitamin D issue has be addressed and am now on an 'as needed' basis since I went Gluten free!!
- Vitamin D Working / Worked
- Really has helped with the diffuse bone and joint pain. I can not stress the importance of this vitamin enough; especially with people who are housebound, or sleep days to work nights, prone to depression, are post menopausal, or live in a northern climate.
- Yoga Somewhat Helpful
- Helps maintain my flexibility. I have practiced yoga for 21 years. I still have a strong body core because of it, regardless of the lost of flexibilty and having to eliminate all poses that use the hands knees shoulders or head as the weight bearing body part.
Open Food Allergies
Type of allergy: Other FoodsWheat. 'The staff of life' makes me sicker than heck. Soy, nitrates, nightshades, and some tree nuts. I have to be very careful with lable reading. A small amount of soy flour and edadame can be tollerated but not the oil.
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
