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  • About Me

    Image of customs572

    customs572

    Male, 32
    Denver-Area, CO, USA
    Member since July 24, 2008

    • About Me

      I am a a victim of chronic Pancreatitis. I have had 13 episodes in two years, 10 being hopitalized, and three being life threatning. I am an active member of Steadyhealth.com, and now this site. I do daily research on my condition and have found alot of answers and helpful advice. I am dying from a pancreatic disease that can't be diagnosed even by the experts at the University of Colorado Health Sciences Anschutz Medical campus in Aurora, Colorado. My attending MD is Dr. Raj Shah. He is one of the best. And I am one of the worst pancreatic cases he has seen. I enjoy talking with others whom have this disorder, and spending time researching.

      I am a a victim of chronic Pancreatitis. I have had 13 episodes in two years, 10 being hopitalized, and three being life threatning. I am an active member of Steadyhealth.com, and now this site. I do daily research on my condition and have found alot of answers and helpful advice. I am dying from a pancreatic disease that can't be diagnosed even by the experts at the University of Colorado Health Sciences Anschutz Medical campus in Aurora, Colorado. My attending MD is Dr. Raj Shah. He is one of the

    • Interests

      My intrests are Ebay, my pugs, my family and pancreatic disorder research extensivley, and exclusivally. I also am a huge supporter for recoving alcohol addicts, I being one my self, the pancreatitis is what sobered my up.

      My intrests are Ebay, my pugs, my family and pancreatic disorder research extensivley, and exclusivally.

  • Recent Activity

    November 4

    July 22

  • Journal

    • It has been a while but here is why.....

      Mood November 4, 2009 10:09pm

      Well here be it, or there was it, or now hear it. Well guys as you all know I have ventured from here to there then over there and back to here, none …
    • I am still alive.

      Mood June 20, 2009 12:41am

      To my friends here I wanted to let you all know that I am still alive, I had some treacherous activities going on in my life that did not allow me to …
    • Greetings my friends.

      Mood March 17, 2009 9:26pm

      Hello my missed friends, I have finally come to a point of being able to catch up with myself and things in general in life. As you all may know for …
    • How am I doing well.........

      Mood February 12, 2009 11:39pm

      Well, hello my friends. Yeah it's me and I am still alive, as to how and why I can't answer that but know that for some reason God wants me …
    • Bad thoughts are prevailing

      Mood December 30, 2008 1:24pm

      Friends, I have come to a point in my life that I don't want to do this another day, I am seperated from my wife, I don't see my daughter who …

    Read Journal

  • Hugbook

    Give customs572 a hug



    • Congrats

      From kel71308 April 7

      Josh- I am glad to see that you are doing so well!!! I am extremely happy for you and hope that things continue your way and that you get everything you want!!! XOXO -K

    • Hug

      From kel71308 March 11

      Josh- i am now worried about yo! you've been gone for so long and i realize you have a lot on your plate right now, but i am here if you want to chat. At least check in, so i know you are still alive!!! XOXO -K

    • Congrats

      From kel71308 March 4

      J= great good step, put putting yourself,ogther and be able to focus on you and your health and that know up will be able to expereicne and do things than really make you happy. Remember you come first esp your health and this will allow you to fous on the goos and not the bad. Coputer is starteding t delete as i type so i'll leave you woth this,Iwould have to call it "true" freinship. Just wanted to tell you know how much you have done for each and everyone one focus on yoy. You will never undersand the grdiosity and supprt you have give SO many. I aprreciate you and evrything that you stand for. Get a hold of me so i know what the deal is with you. You had me worried for quite abit and i apoilogize for not reaching out sooner, Any way- would love to chat and home everything in your life is daindy, at least you mentallly, emotionally and physicalllyme next time your on and got a sec. XOXO-KAtie

    • I’m With You

      From alchemist10 February 26

      Hope things are going well. Keep us up to date on how the struggle goes.

    • Hug

      From Arrowboy February 20

      I am sorry I didn't look at this until today (your journal entry). I need to look and see if I have your email address (or if you want to give it to me). I have been sober for 13 yrs (and am still in spite of the pain meds, that's all about motive). I sponsor about 6 guys and spek at institutions regularly. AA was my savior ad helped me to find a relationship with a God of my understanding. I am here for you and willing to talk anytime my friend. God bless and...REACH OUT! There are people who will help you but you have to ask and be willing to follow direction.

    Read Hugbook

  • Support Groups

    • Close Pancreatitis

      Treatments

      Cymbalta Working / Worked
      Using due to depressive state from pancreatitis, It works really well and gives me drive and energy. It also controls my anxiety rather well.
      Oxycodone Working / Worked
      Work sgreat at 60mg per day ER, I need it daily, causes me motivation, dry mouth and moody when I forget the med.
      Hydromorphone Working / Worked
      HUge deal of pain releif this is used only for break thru pain though, and could very easily become an addictive drug physically, the docotrs cring e when prescriing this due to its abuse, for me it is a real need for it. I am taking 12 mg a day on really bad days
      Trazodone Working / Worked
      Used for sleeping at night, as well as anxiety releif
      Lipitor Working / Worked
      Used for my cholesterol seems fine but causes me muscle mass loss big itme, and I lose weight like no other on this.
      Niaspan Working / Worked
      again for cholesterol, but this makes me burn at night sometimes a feeling as though I am on fire. 1000mg
      Prilosec Working / Worked
      Ulcers, and heartburn, not a bad drug but if I dont take it one day beware of the severe heartburn you could get quickly
      Reglan Working / Worked
      to keep the system regular, an absolute when I am taking a constant dose of pain meds, works fine three a day thirty minutes before a meal 10 mg.
      Pancrelipase Working / Worked
      taken with every meal, but beware you must take your omeprazole with it or it creates a bad heartburn, used for aiding in the breakdown of foods, when the pancrease does not do its jobb .
    • Close Chronic Pain

      I am a 31 year old male who resides in Colorado, I am suffering from Chronic Pancreatitis, I have had this for seven years now the last three being the worst, I have had 13 attacks in a litttle over 2 1/2 yrs. I live on oxycontin and dilaudid and phenergan. I enjoy doing research on my illness as well as the drugs that are prescribed for these illnesses.

      Treatments

      Cymbalta Working / Worked
      Aids in depression and anxiety also provides nerve blocking agents.
      Oxycodone Working / Worked
      On it daily, have to have it.
      Hydromorphone Working / Worked
      Break thru pain management very well drug IV is better though.
      Promethazine Working / Worked
      Nausea sustaining drug works well at 25mg.
      Zocor Working / Worked
      Lose alot of weight on this one.
      Niaspan Working / Worked
      Works fine now at 1000mg if I forget to take it though causes burning.
      Creon Working / Worked
      Enzyme supplement in aid of food digestion.
      Reglan Working / Worked
      Keeps the body regular things keep a moving out
    • Open Depression
      Type: Clinical (Major) Depression

      Dx with depression as a result of chronic pancreatitis, have had this for 10 years and depressed for the last three, due to hospital admits and length of stays.

      Treatments

      Cymbalta Working / Worked
      Works great at 60mg a day, sometimes I up to 120mg on really depressed days. I was prescribed this due to my chronic pancreatitis. The doc says it has pain blockers.
      Oxycodone Working / Worked
      Gives me drive!
      Trazodone Working / Worked
      I take this at night to use as a sleep sedative, it works great at 100mg.
    • Open Alcoholism

      An alcoholic for about 12 years, and it caused me medical problems specifically speaking pancreatitis, it is a very painful thing to have, I have now chronic pancreatitis, which basically means it never is going to go away.

      Treatments

      Trazodone Working / Worked
      Willpower Working / Worked
  • Groups

  • Friends


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