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  • About Me

    Image of thewolfbitme

    thewolfbitme

    Female, 35
    SK, CAN
    Member since July 20, 2008

    • About Me

      Professional student/walking DSM/Single mom of an awesome son who has Autism. Up till my episode of TEN in February, I was working part-time as an Administrative Assistant for a Non-profit; and going to school. I'm working towards a degree in Sociology - then Social Work. I live with SLE, DHRD, Epilepsy, Asthma, Endometriosis, a Heart Murmur, and Acid Reflux. In February of 2008 Toxic Epidermal Necrolysis almost took my life. I am very blessed to be here today.

      Professional student/walking DSM/Single mom of an awesome son who has Autism. Up till my episode of TEN in February, I was working part-time as an Administrative Assistant for a Non-profit; and going to school. I'm working towards a degree in Sociology - then Social Work. I live with SLE, DHRD, Epilepsy, Asthma, Endometriosis, a Heart Murmur, and Acid Reflux. In February of 2008 Toxic Epidermal Necrolysis almost took my life. I am very blessed to be here today.

    • Interests

      Advocacy, Reading, Writing, Singing (only for the boy though), and working towards a state of wellness so I can return to school in January of 2009.

      Advocacy, Reading, Writing, Singing (only for the boy though), and working towards a state of wellness

  • Recent Activity

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  • Journal

    • This entry is private

    • This entry is private

    • I'm So Tired of Being Tired

      Mood July 25, 2008 12:14am

      This fatigue is really starting to tick me off. LOL. I fell asleep 3 times on the bus today, missed my stops, and ended up taking 3 hours to get home …

    • One Day at a Time

      Mood July 24, 2008 12:50am

      Well, I got through another day. *pats myself on the back*. It's been a loong week for me, and I am praying like crazy that things get …

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  • Hugbook

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  • Goals

    Goal Completed on May 11, 09
  • Support Groups

    • Close Lupus

      I was diagnosed with SLE in 2000. I've been on all the treatment medications, and am now left on Imuran (which is not working since April).

      Treatments

      Azathioprine Somewhat Helpful
      I've been on this for almost 4 years without a problem till now.
      Medrol Working / Worked
      Imagine Tazmanian Devil x10000. Got my house mighty clean!
      Methotrexate Not Working
      It made me totally sick!
      Plaquenil Not Working
      Caused eye damage, and was taken off.
      Prednisone Working / Worked
      When I'm in a Lupus rut, this definately gets me out of it.
      Reiki Working / Worked
      Since receiving a reiki treatment after my hospitalization it cleared up my vasculitis and it hasnt returned. Normally have vasculitis x3month
    • Close Epilepsy & Seizures

      I was diagnosed with Juvennile Myoclonic Seizures/Absense Seizures this January. I was then put on Lamictal, and within 3 weeks, developed TEN from the drug.

      Treatments

      Clobazam Working / Worked
      This has been my lifesaver. In more ways than one.
      Lamictal Not Working
      This drug landed me in a burn unit for a month. Never again!
      Tegretol Working / Worked
      I was on this at 16 years of age, till I was 20 and declared "seizure free" till this year.
  • Groups

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